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  1. ReginaS

    breathing difficulties

    Hi all, My PALS describes that he has the feeling that the air passages in his head (above throat) are not staying open but collapse or close when his head is in certain positions. Do you know what is happening? He is uncomfortable lying down, elevated lying on one side is OK - on the other...
  2. T

    Where to Go From Here

    Hello. My husband was diagnosed ALS May 24, 2018 at age 43. It all began in April 2017 when he began having difficulty clipping his nails, left hand onset first. From there it was over a year of testing, specialist, etc, which is the only normal thing I guess about this disease; difficult to...
  3. M

    Twitching for about two weeks - concerned

    Hi all -- Sorry to add another "twitching" thread to a forum full of them, but I suppose everyone's experiences are different and hopefully everyone deserves a chance to be heard. Here's mine: For about two weeks, I've had a twitch in one spot in the middle of my forehead. Same exact spot...
  4. Kristina1

    my gripe- unsolicited help

    After reading the MY STUFF post it reminded me of a gripe of my own that's been coming up a lot lately. I don't like when people take over a task from me to help me without asking. This is usually friends/family at home. For example if I am at the counter struggling to spoon food onto my plate...
  5. R

    Newly diagnosed with MND/probably ALS but have questions

    Hi there – I am a 53 year old female and was recently diagnosed with MND, probably ALS, after two abnormal EMG’s in December. I have had blood work for the usual things (all negative) and MRI’s for the spine and brain (also negative). My only presenting functional issue is weakness in my...
  6. W

    Fascinating Fasics

    Thanks to anyone reading or replying to my thread. I have been lurking on here for a few months and have restrained myself from posting. Having witnessed the patience and compassion shown by the sites members and my growing concerns, I hope you don’t mind me posting. I started with...
  7. G

    another EMG, concerned

    Hi all you wonderful and supportive people in here! I have posted long time ago and have been in limbo for more than 2,5 years. Its really a hard time and I am progressing slowly and my symptoms and weaknesses are never ever «taking any break». I do have symptoms now in limbs and also bulbar...
  8. G

    Question about EMG

    I would like to ask one thing about EMG. I had my EMG (clean) but still I have some concerns, since i've been reading scientific studies on the Internet which made me a little worried. (Symptoms lasting from september) I don't understand how a little group of muscles can be in fact useful for...
  9. B

    Very scared abt Bulbar Onset, plz help

    I would like to thank all of you in advance for reading my concerns. I am 39 yeasr old male. It all started in july last year. Initially i was suffering from burning pain in my arms and legs. I went to a dibatologists. But my sugar level came normal. Then I went to a neurologist. He adviced some...
  10. K

    My Husbands Worried.

    Hi all, thank you for allowing me to join and be able to post here. I've been on this website a lot since October 2017 and I'll explain why. My husband, who is 31 years old began getting some twitching in his muscles in or around October 2017. He went to his GP for around two visits before the...
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