reading

  1. L

    Confused

    Hiya guys, New to this forum thought i would introduce myself. I have enjoyed reading all your helpful posts. I was having a nosey round but couldnt find an answer to my query specifically so while saying hello i thought i would ask here. So the very short version of a very long story.... i...
  2. C

    Scared out of my mind

    Hi there, I'm after a little advice please. I started having leg numbness 3 weeks ago which has since progressed to full blown muscle fibrillation all over my body. These can sometimes be seen as a twitch or jerk, and also felt by myself and not seen as such ie calf muscle. My feet are so cold...
  3. J

    Looking for anyone who remembers my mom on this forum

    I found this forum and have hopes that perhaps my mom was active on it during her final months. First off, I want to say that this post is in memory of my mom, Jacquie, who as diagnosed with ALS in May 2016 and passed away on January 26, 2017. I am searching the forums here but have no idea...
  4. G

    Still in «limbo»

    Dear all great people in here!! I posted here in march for getting advise on my Emg results. I am still in the limbo have had one more Emg since last. This was abnormal and showed spontanious activity but not enough to diagnose. The worries are my symptoms are getting Worse and I am so worn out...
  5. A

    Symptoms?

    Hi, A few weeks ago I searched causes for "twitching" on Google. I have been experiencing some twitches in my thumb and calf. Every day since then, has been a blur. ALS popped up as a potential cause and therfore I read into it. I have found that I seem to have other symptoms as well. I...
  6. A

    Corestem's Neuronata-R

    I was just reading this market report & it makes mention of 3 drugs available on the market for ALS - Radicava, Riluzole & another called Neuronata-R. I've never heard of that one before & it looks to be a Chinese Stem Cell therapy? I wonder why it made it into this report... Amyotrophic...
  7. B

    Fears of Twitching and Weakness

    Hi, I am new here although I have been reading some forums for a couple of weeks. Just wanted to get your opinion on my symptoms: Started with a chills sensation that lasted three days along with pins and needles on my head in May but stopped after that. This followed with some hard headaches...
  8. K

    Worried about my children

    Good afternoon, My father was diagnosed with ALS on October 6, 2017. The critical care neurologist said he was about 16-18 month into the progression of the disease and gave him about 8 months. In retrospect, we feel that he was probably more like 2-3 years into the disease. He passed away...
  9. I

    onset

    I'm curious as to how this starts. My reading talks about coughing and swallowing (going down wrong tube) issues. I have the feeling of a bit of a "ball" that things need to get around as I swallow. That's the only way I can describe it. Can someone give any kind of comment to that feeling?
  10. C

    Very scared, symptoms getting worse. Please some advice

    Hi guys To begin with - sorry for grammar. English isnt my first language. Ive been reading on this forum last month and Im truly sorry for you who must live with this absolutely terrible deseace. My story is quite long and I do understand if you thinks that this is just another twither but I...
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