rant

  1. Kristina1

    hate taking riluzole

    Just a rant. I'm not good at swallowing pills. It's hard for me to direct the liquid & pill in my mouth, it gets stuck in pockets near my cheeks, and when I finally do get it to the back of my mouth it is hard for me to swallow and sometimes takes several tries. Nudexta and my other...
  2. C

    Fall and a ...rant?

    Innocence lost, perhaps? Mon took a nasty fall and banged up her head and wrist on Saturday. One eye swelled shut, purple down onw side of her face, really unstable. When she was still, well, wonky and having extra difficulty walking today, I took her in to the hospital where she goes to...
  3. Kristina1

    denial/acceptance

    This is mainly a rant. I'm frustrated by emotional lack of acceptance of this diagnosis. Intellectually I am there, but emotionally I keep torturing myself by over-analyzing everything and thinking up reasons why maybe it could be wrong. Part of it is that I am not disabled by this yet...
  4. O

    Really really worried

    Morning Everyone, Firstly may l apologise in advance if my post is the same old worried story, when l know there are genuine real sufferers on here. l have read the stickie page but something is still eating up inside me:-( During the last week or so l have been suffering from pain in the...
  5. DaChief

    New Member Here

    Just found this site in my research of what I have come to believe is ALS. My symptoms started 18 months ago with slurred speech. After a beer or two I would sound like I was trashed and my wife accused me on numerous occasions of drinking too much. When it started happening without alcohol she...
  6. M

    Missing my mom

    I just need to rant here tonight because it has been a crazy tough week at our house. Along with physical changes my mom's personality seems to have taken a drastic change. I know anger is a part of dealing with this disease and potential FTD. She seems unrecognizable to us now and has been...
  7. chally

    Erosion

    Well after a big family wedding that was a lot of fun I am now at home trying to rest up. My body is like a big shovel of really good earth that was placed in a creek of moving water and just slowly little by little it crumbles away almost unnoticeable at first then more and more so as the water...
  8. pdcraig

    One dimensional

    Hi everyone, been a long time since I've posted. Long overdue for a bit of a rant. Things have been pretty chaotic for the last couple of months. If it isn't something at work, it' something with my PALS or something with the care facility. Thankfully the home front is relatively calm, only my...
  9. SLAUGHTER1555

    Which is worse Living or Dying

    Hi CALS and PALS its been a While since I've been on the forum and alot has happened. Its been a lil over a year since my husband's Dx and the stress of caring for him has been enormous. I wont even begin to about the Finacial stress we have endured. And medicare OMGOODNESS absolutely...
  10. P

    mini-rant

    It's my mom's birthday early next month. With the pace of her progression, it may be her last birthday. I recently moved her to DC where there are GREAT restaurants nowadays, including one that was named the best restaurant in the US by Bon Appetit in 2014. They don't take reservations. You...
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