rant

  1. A

    Falling apart - a bit of a rant

    It's been a rough couple of days and I am really struggling. I need to vent a bit, and I feel like this is the only place where anyone will actually understand. I had to call an ambulance to take my PALS to hospital on Friday night. He's been constipated on and off for a couple of weeks and we...
  2. A

    Drained

    I am new to this forum. My husband was diagnosed several years ago, although looking back, I see the changes in his personality well before his diagnosis, but didn't know what it was at the time. I try to take things one day at a time, but finding myself increasingly drained of energy. There...
  3. A

    What do you say when you can't say "It's going to be okay,"?

    I have lingered a lot on these pages the past few months, but not really participated. Thank you to all of you for sharing your stories, insights and experiences. It’s been so helpful to me so often, and comforting to know there is such a supportive community of people here who actually know...
  4. C

    Why do family do what they do?

    This is going to be a long rant....my sister in law was over at my fathers house this past weekend and decided to go through his emails and start deleting things that she didn't want anyone to see. She was under the pretext that she was trying to log into his FB account to show my sister how to...
  5. A

    Nerve conduction study

    Merry Christmas to all you lovely people. Quick question my ncs showed no peroneal nerve response was wondering if ncs are normal in patients with als. This is so ridiculous I was doing good with my anxiety holidays set me back cause I am a single mom and I know my son is enough but I feel...
  6. L

    Doctors opinions on tracheostomy?

    My husband gets seen by the VA but they sent us to UT Southwestern to the pulmonologist to get a sleep study and orders for a cough assist and Trilogy. They are also the ones who are going to do the PEG tube. We had our first appointment there a couple of days ago. Towards the end of our...
  7. A

    Upset Rant

    Hi All, I'm having a really down day and need some help... and probably hugs.. i don't know. Here's a bit about us: My husband had his first symptoms 5 years ago in his calf muscles. Since then it pretty much stayed where it started, calf muscles. His toes are slightly affected, his knees a...
  8. kevinw

    What Happened Here?

    I know I am 100% guilty here also for not posting a lot, but what the heck happened to everyone discussing PLS? When I joined this forum in April of 2008 it was the place to be. I remember refreshing the PLS page every hour and there were new comments or topics. Now the last post was from 07/02...
  9. L

    Zoning out

    Hi all, My PALS insists on driving. He has been and continues to. Its when we go on a family trip that I actually see first hand how he is doing. I have to say there is no swerving and he is slow, constant and safe basically. However, the other day he insisted on driving my girls and a...
  10. N

    Struggling

    Sometimes I even hate to do a rant like this because I feel like I'm whining. It's taken me 24 hours to get up the courage to put pen to paper, as it were. Yes, I'm struggling. The why has multiple reasons. These are on no particular order. 1) sleep. Hasn't been going well. Mostly due to the...
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