Hi All
I have posted before about Mum but just want to put a few words down about our situation , selfishly more for me at this moment in time.
There is Mum , my sister and me - Mum has MND and I and my sister are trying to help her through this. My sister is an incredible person and has had...
Jay was diagnosed with bulbar on 1/3 2008. Got his bi-pap when Emory confirmed diagnosed on March 18.
My hubby had pneumonia before his PEG surgery on 8/22/08. Jay has difficulty speaking(more than usual) and at this point it seems to be because of his breathing problems so we went back for...
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Hi, just wanted to vent to someone that would understand my frustration, and also understands EMG and NCV findings....
I am done, through, and finished with a certain neurologist in NYC!
I saw him on the 28th of August because my laryngologist wanted to do another follow up EMG of my vocal...
But I'm a friend/caregiver of a 65 y/o lady that has been diagnosed with limb onset of ALS since August 07. Her condition has decreased rapidly, in Sept '07 she was still walking, and using her limbs. In March, she was hospitalized, and has lost most of the use of all of her limbs, her...
You know what pisses me off? If I ask 50 people on the street what ALS is I'd probably get 5 that could tell me what it stands for or know Lou Gehrig's. Out of those maybe 2 that actually know something about the disease. That isn't the problem that is part of our job now; to educate.
What is...
Hello all... still new to this and did my damndest to not come back...lol wishful thinking i guess... My mom was diagnosed 2 years ago... well we were not told until October '07. Its progressing faster than i thought it would... then again i hoped it wouldnt at all. Shes been telling me...
Season Greetings to all. Almost every morning I try to read the latest threads, it's helps me stay grounded and with it instead of feeling like I am floating through a nightmare by myself. To know that you are not alone in your struggles is truly a comfort. Our next wave of company is here then...
Just wondering if these are things people with als have and I've noticed since I got sick one year ago. Besides the atrophy everything pops and snaps when I move, my nails are ridged and have a purpleish tinge in the moons. In my feet and hands where I have the most atrophy the skin on my palms...
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Hi everyone
This is my first posting and I wanted to say hello to everyone and ask some advice to those who have been in the situation of not having a diagnosis for a long time, and if these symptoms sound like they may be ALS..
My face went numb last summer, and ever since, my lips and cheeks...
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als
als?
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brain
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cmt
data
denervation
diagnosis
emg
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possible als
pulmonary function test
rant
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testing
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twitch
wanted
HI there again, had a couple of bad days last week, but I seem to be back inline. I sometimes cannot understand why I go into this deep anger, and I keep on fighting back which seems so difficult.........but somehow get back which is good for my family. My two boys now know what is going on, and...