rant

  1. T

    The Lonely Burden of Not Dumping In.

    Hello Everyone: This is how I basically handle most crisis in my life: How not to say the wrong thing - latimes The gist is, draw a small circle and write the person at the center of the current crisis in the center ring, then draw another ring and write the names of the people most affected...
  2. KimT

    Multiple Medical Issues

    I wasn't sure if I would post this at all. After deciding I had no idea where to post it but, for me, it feels like a rant/complaint so here it is. Since my diagnosis I've always believed that I should take good care of my general health, get some good sun each day possible, get some light...
  3. D

    Communicate with Dr & Advice

    Hello All, First of I would like to say thank you for opening this forum to people like myself that dont know whats going on with us and are scared sh-less. I think its great that your open to helping both people with ALS and those that are not yet diagnosed or that are just suffering from...
  4. T

    Atomic Meltdown

    I do not have to explain to any of you how much living with a spouse with ALS SUCKS! I am so very tired! I am sick of putting on this brave face! I am pretty fed up with my husband and his demands! I DO NOT want to be responsible for every little detail of our lives. Paying bills, lawn work...
  5. lgelb

    Rant or something

    "Showing the reality of ALS" in a PSA campaign is a nice idea, but how real is it to portray PALS who have survived 10, 14 and 15 years so far (only ~20% live >5y), respectively, two of whom have trachs, rarely used in the US? Following each vignette with the hyperbolic tagline about having...
  6. N

    Bit of a meltdown....kind of embarrassed

    I went to my first ALS Assoc CALS meeting and everyone went around the room describing their PALS current situation and when it started, how it started, details, etc., in quite length....and I was unfortunately last on this circle of sharing (first time, hate sharing anything usually in public...
  7. A

    Falling apart - a bit of a rant

    It's been a rough couple of days and I am really struggling. I need to vent a bit, and I feel like this is the only place where anyone will actually understand. I had to call an ambulance to take my PALS to hospital on Friday night. He's been constipated on and off for a couple of weeks and we...
  8. A

    Drained

    I am new to this forum. My husband was diagnosed several years ago, although looking back, I see the changes in his personality well before his diagnosis, but didn't know what it was at the time. I try to take things one day at a time, but finding myself increasingly drained of energy. There...
  9. A

    What do you say when you can't say "It's going to be okay,"?

    I have lingered a lot on these pages the past few months, but not really participated. Thank you to all of you for sharing your stories, insights and experiences. It’s been so helpful to me so often, and comforting to know there is such a supportive community of people here who actually know...
  10. C

    Why do family do what they do?

    This is going to be a long rant....my sister in law was over at my fathers house this past weekend and decided to go through his emails and start deleting things that she didn't want anyone to see. She was under the pretext that she was trying to log into his FB account to show my sister how to...
Top