radicava

  1. KarenNWendyn

    Radicava copays with private insurance

    Maybe this should be a new thread, but does anyone on this forum know what kind of co-pays occur for Radicava with private insurance (non-Medicare)? My experience when I was working as a rheumatologist, prescribing biological infusion drugs for patients with rheumatoid arthritis, was that if...
  2. M

    Quitting Work & Getting Insurance

    Hi I'm still working FT but feel I need to quit soon. It's getting harder and I'm getting slower and more stressed. The reason I haven't quit yet is because I need my insurance. I really want to get on Radicava and I'm afraid that if I quit work I'll have to wait 5 months to get on Medicare...
  3. P

    Edaravone/Radicava access in Europe?

    Hi there, I'm new to this forum, so I hope I don't break any rules by posting a message here. Edaravone (Radicava) has been approved in the US, but I'm wondering how can the rest of the people have access to this drug from Europe. In my case I live in Spain. I have two important questions...
  4. S

    Have you started Radicava? Use this thread to discuss experiences with receiving radi

    Has anyone started Radicava yet? If so, please tell us how it's going. How was it getting approval? Is your doctor supportive? Have you noticed any changes in any aspect of your ALS? I'm especially interested in any bulbar-onset folks and how Radicava affects their speech. Although it's...
  5. M

    Radicava / Edavarone - DENIED!! Help?

    Hi! I was newly diagnosed in March 2017, but problems started around Aug or Sept 2016. So I'm less than 1 year in and doing ok for now, but yes, I'm declining. Anyway, I was hopeful to go to my 2nd ALS clinic visit because I thought I could get Radicava. My clinic date was 8/4. My doctor said...
  6. C

    Treatment

    I finally had my appointment in the ALS clinic on Monday. I met with my case worker, OT, PT, and someone from the MDA. I now have what seems like a ream of paperwork to read through. I guess the good news is that they hope to start my Radicava (edaravone) infusions middle to late August...
  7. S

    UK Approval of Edaravone

    Hi all, Since the FDA in the USA have approved edaravone for use in their country last week, the UK should try its damnest to do the same, asap so as to extend as many lives as possible. I have written to my MP in the UK, below, and have so far had no response. Can all UK forum members to...
  8. R

    Edaravone ( Radicut, Radicava ) Action Needed - Possible Access Program

    Important action item! There are indications that MT Pharma America (Mitsubishi Tanabe) may well be willing to set up an early access program for edaravone for people with ALS. It's very important that they hear from people to let them know that this would be used and appreciated. Here is...
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