radicava

Hello everyone, After having received a diagnosis of PLS 7 months ago, my doctor changed the diagnosis to ALS 2 weeks ago based on lower motor neuron symptoms. I've been on riluzole for 3 months, and just signed the paperwork to start radicava. My mind is definitely spinning at the moment, so I...

I will be attending my first Clinic Visit next week. I was diagnosed in January but received a second opinion from my current doctor several weeks later. In May, I did have a follow-up visit with my doctor concerning my first three months with Radicava infusions and to check my progress. My...

This new thread's purpose is to document results after taking Radicava.

Could you help us understand a Dr's responsibility to a patient when a drug like radicava is approved for treatment. We don't know if my husband- who has slow progression at this time - should begin treatment. Thankfully -we have great medical insurance at this time- so finances aren't the...

Hello Everyone! My name is Cathy and am new here and trying posting for only the second time. Not so certain about how the rules and regulations work and feeling a bit apprehensive. What do I say to all of you? I am 53 years old and live in Ohio with my husband. We recently became empty...

Dear all, My father is suffering from MND since 12/2017. My father's condition is deteriorating fast & doctors are advising for Radicava. can someone help me out with effectiveness & results post radicava injection.

My wife had a screening exam today. All looked good, waiting for the blood test results. They should be good, as she just had blood work done recently and all was good. I saw just one other post on this, but it sounded like the guy didn't continue with the trial. They told us that one in...

Sadly my dad passed away on April 27th/2018, a few weeks after his 76th birthday, seven months after his diagnosis in October 2017. My dad was a very active man right up to August 2017 when he really started to feel something wrong with his legs, arms and speech. Everything hit him at the same...

I had sought and received useful feedback in June and November 2017. At the time, my neurologist had two possible diagnoses: a type of neuropathy or ALS. I was being treated for neuropathy with IVIG, and -- given my exercise regimen and other information -- commenters thought I did not have...

Hi all! I was diagnosed in October of 2017 and have found great support in some of the pages on Facebook and thought I would give this forum a try. Being 21 makes this even more frustrating because most people my age don't even know what this is, so it's refreshing to have a place where everyone...