questions

  1. C

    Follow up, same symptoms and test results. Upcoming EMG

    Hello i posted on here a few weeks ago and since then i saw a neurologist regarding my concerning symptoms, would post in my old thread but its closed and i was wondering if i could ask some questions. Since my last post, the weakness (I will say perceived weakness for the time being as the...
  2. N

    Worried about some symptoms and emg result

    I just have a couple questions. I realize this is not an anxiety board nor are you all doctors. I have been doing a lot of research online after I had an emg of my left arm. I looked up some things that were on my results and something that kept coming up was ALS. I knew what ALS was before...
  3. M

    Few questions

    Hi Guys, Unfortunately back again. So sorry Shiftkicker please dont be upset! I have a few quick questions. So , as I said earlier bodywide twitching for the past 4 months. (20 years old Male) The other day I just started warming up on the elyptical, and I got a weird pull in my leg. So I...
  4. P

    Girlfriend diagnosed yesterday...

    I've known in my heart that this was als. 1 year ago she and I were snowmobiling. Symptoms first started around June. She needs help getting into my truck now, has slurred speech. And can not swallow a pill, but she can't open the pill bottle anyhow. We are referred to mass general. I...
  5. K

    Sorry to find myself here but glad I found you

    Finally, here. I have been a longtime lurker. I have been tempted to ask questions, but ultimately I decided to wait. And I waited for a long time. Having been finally diagnosed, I will let you know how everything began. In the spring of 2016, I started noticing some problems with my left...
  6. D

    My dad's progessive weakness - concerning?

    Hi all, I'm a 25 year old male from Detroit and my dad is 53 years old. This post is about my dad. Background info: my dad has plenty of other health problems that make weightlifting harder for him, including arthritis in his knees, a bone spur in his back which causes a lot of pain and some...
  7. E

    Arimoclomol

    Hello, My father is considering applying for the Arimoclomol Phase III study in Madrid. Since we are new to this, I had some questions: 1) How promising has Arimoclomol been? Browsing, I was surprised to find that an earlier trial was done 10 years ago (!). Is that timing normal? Why so long...
  8. P

    Concerned about ALS

    Good Afternoon, I have spent plenty of time reading on this board and trying to find answers to all the questions that I have. A lot of my questions have been answered, but I still have a few doubts. I am hoping that you guys can help me answer some of those. I have been experiencing symptoms...
  9. R

    More Than Our Stories 2019 - A different kind of advocacy conference

    Please consider participating in the second annual www.MoreThanOurStories.org Feb 12-13 in Washington, DC. This is a different kind of advocacy conference. No Powerpoint. No formal presentations. Lots of healthy discussion about government policies that can be improved for people dealing...
  10. B

    2 emg's, still not convinced

    Keeping it short, I have three questions. 1. I’ve had two emg’s done by two different neurologists. I didn’t think the first one was done correctly and I’m worried the second one wasn’t either. The second neurologist did the emg at my request because of my ALS worries and also to test the...
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