questions

Hi All First of all thank you for all of your support and taking the time to answer our questions and helping us understand what to make of our symptoms. My situation started in early January where I was having sharp, pin like pain in my left thigh - I blamed it on exercise at first but now...

I have had 2 accidents now and I just dont understand how it's not ALS related. Both now I have been in the bathroom on time but as soon as I see the toilet I cant hold it anymore and it all comes out. Is this normal? Plus my hair is so greasy and my hair on my head and eyelashes are getting...

Thank you to anyone taking the time to read this and giving me your thoughts and insight. Please know that it is truly appreciated. I have read the stickies, but still have some questions. I am a 40 year old male. I began with a twitch in my left bicep in early December 2018, but the...

Hello everyone. First if aller sorry for my english, it's not my first langage... I'm a 37 y.o. girl. I have a MS suspicion because i have hearing loss at one frequency in my right ear (-50db in high frequency). My mother, brother ans uncle have MS. But i have a LOT of fasciculations...

Hello: I am a cALS for my husband. I have questions about the Brainstorm Cell Therapeutics (Trial of NurOwn for ALS): 1) What are the pros and cons of this trial? 2) It seems to have promising anecdotal info. -- why aren't more people doing it? 3) When will results be published? 4) When could...

Hello, I'm sorry for all of you that have this horrible disease. I've been worried about having it myself for the last 6 months. I have a few questions to you that would help set my mind at ease (or not): - 6 months ago my little and ring finger of my right hand bcame a bit stiffer...

Hello all, my name is Christian and im 27 years of age. First of all i want to tell you all im a little embarrased to come here without any diagnosis and "annoy" all of you good hearted people with another of these threads which i can tell you've seen plenty of. With that said im also kinda...

Hello all, and I’m happy to talk to such a great supportive community I read hundreds of post and you guys are amazing with feedback, I have read the intro post. My name is john and I’m 27 I’m just wondering if this is normal,2 weeks ago I notice my lip twitches, I’m like okay cool wherever...

Thank you to everyone on here who donates their precious time to answering questions from strangers on the internet. I’ve read the stickies, and a significant amount of posts on here (and am moved by your patience and compassion). My question is: in your collective experience, whether personal...

Hi there – I am a 53 year old female and was recently diagnosed with MND, probably ALS, after two abnormal EMG’s in December. I have had blood work for the usual things (all negative) and MRI’s for the spine and brain (also negative). My only presenting functional issue is weakness in my...