questions

I went for my clinic visit a couple weeks ago and the neurologist suggested hospice. I've lost 18 lbs in 3 months. I knew I lost some weight but not that much. My FVC was 39, down from 41 three months ago. Both my husband question the accuracy of this reading as we've both noticed a...

My younger brother was just diagnosed last week after having seen several physicians to rule out stroke, cancer, etc. The neurologist he first saw detected nerve damage but didn't give him any additional referral or information. He was eventually referred to another neurologist in Iowa City...

Hello. My wife was diagnosed with ALS 12-20-17 after months of symptoms. She has been through so much in the last two years that the symptoms were overlooked by her doctors. She had surgery for breast cancer 01-2016; heavy chemo for 18 weeks; 33 radiation treatments; broken pelvis from fall...

This is a great site for those of us battling the questions and anxiety relqted to the subject matter. It has calmed me some. I read the sticky. My stuff started with forearm spasms on both arms. Also would feel twitching in both hands. As my concern grew so did the twitches and started to...

Hi all, my name is Mari and I'm Finnish. I lost my mom to ALS on Nov 17th. She had an Alzheimers diagnosis on July 2017 as we took her to memory tests as she didnt seem to remember everything as normal and did not cook or do gardening anymore nor cleaned the house as usual. She was diagnosed...

Is there a perceived weakness before clinical weakness? Or does it just shut off like a light?does atrophy occur due to lack or moving the muscle or does this disease cause atrophy while you're still able to use that muscle? Does the twitching occur before the weakness or after? Right now I got...

Do you have frequent muscle cramps? Have you been diagnosed with a motor neuron disease like Amyotrophic Lateral Sclerosis (ALS), Primary Lateral Sclerosis (PLS), or Progressive Muscular Atrophy (PMA)? If you’ve been diagnosed with motor neuron disease and meet the requirements listed below, you...

On behalf of the The ALS Association and Vitamin Enriched, a real people casting company in NYC, we reach out to PALS and CALS for participation in a public service campaign. We are looking for people who are living with mid to advanced stage Amyotrophic Lateral Sclerosis (ALS), and their...

I can't handle it... My dad has been coughing for about 2 weeks now. He starts at about 7pm and it continues on until about 2am. It's so difficult for him and the rest of us to sleep. And I just don't know what to do!!! It seems that the reason for his cough is a partial collapse of his left...

Hello I have been reading several threads on the site since my friend was diagnosed with ALS 5 months ago. First I want to say this site has been a wealth of information and I am grateful for all here who answer questions. I was hoping to get some information on the Bipap vs the trilogy. My...