I haven't posted in a while so I wanted to update.
One of the main reasons I haven't been on here is... I'm writing a book!
Or trying to. It has nothing to do with ALS or anything autobiographical. It's a scifi/fantasy romance. I've long been an avid fantasy reader, and always had stories of...
I don't use bipap during the day, but looking to the future, I noticed the permobil PWC loaner I have has no storage place where you could put the trilogy if you were using it in the wheelchair. I'm told the PWC they are ordering for me through insurance will be similar to this one. So once...
At clinic earlier this week, DH explained the troubles he was having controlling his PWC. He has lost just about all control of his hands, save his right thumb. The wheelchair rep suggested trying a different joystick, but when the OT came in (wish they could have been there together) he...
My PALS is getting a PWC in a few weeks. He is trying to decide if he wants the forward tilt. He can't transfer at this point. Would this help with making himself more comfortable with changing positions? Insurance isn't going to pay for it so we need to know if it is worthwhile to add it to...
For the past month I've been using a power wheel chair loaned to me by the local ALS Association that is exactly the same as the one that is being ordered for me. My wheel chair is a little less than 25 inches wide and if i go slowly it does fit through all of my 28-30 inch doorways and...
My Dad was diagnosed in Dec. 2017, with limb onset, starting with his hands / arms. Yesterday evening, he was unable to stand from his lift chair for the first time. My husband and I drove over and were able to get him out of it with the lift, (after a youtube troubleshooting video. It was...
I just received a lovely Permobil F3 from my ALS loaner closet. I can still walk using a rollator or cane but have slowed way down. The tipping point (pun intended) recently occurred while out on a walk with my dog and my walker. I was bending over to pick up poop (the neighbors love it when...
This is probably something many have already done, but I will add this just in case it helps anyone. I want my PALS to have as much independence as possible yet still be able to easily call me when she needs help. Like with dressing or after dropping something under the recliner. So, I bought...
I received a Permobil M300 loaner from my local ALS Society a few months ago. I've been having fun with getting out and about, especially now that the weather is nice. But one problem is that the ride is really bumpy. For example, when I go over sidewalk cracks it feels like I'm really hitting...
Sorry for all the wheelchair posts. it's a whole new world and very overwhelming to figure out. My doctor put in a referral for the PT wheelchair eval but as my hands continue to lose function im wondering how can I operate a pwc once i get to the point where i can no longer use my hands at all?