Hi...I had originally posted several months ago with concerns over ALS...had an EMG done...etc. EMG came back clean and for a bit I still stressed but eventually relaxed my fears until recently.
Quick bit of background, I am 25, first symptom I noticed was about 1.5 years ago I was jogging...
Hi, my mother is 72 yrs old and is under the care of a neurologist. Her symptoms include: muscle loss in right hand, speech slurred, difficulty in chewing, weight loss (10lbs), saliva drool, few times the jaw cramped at night, chattering of teeth at night time, yawning and recently poor...
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Diagnosed in June 2011. I had 3 appointments at the University last week. First one was for physical therapy, second one was to meet with a nurse to get more educated on PLS, and the third was a pulmonary function test. The PT thinks that it would be a good idea to get a walking stick to use...
Hi Everyone ! My name is Laura and I have been lurking here off and on since January. I was diagnosed with ALS yesterday at the Mayo Clinic in Arizona. I didn't want to post until I had a diagnosis and I was trying not to panic. I am also a licensed practical nurse.
Last summer I started...
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Ok here's my question, I was diagnosed with bulbar onset over 3 years ago and the first specialist my neurologist sent me to see after my diagnosis was secondly and thirdly comfirmed was a respiratory and sleep specialist (I assume because people with bulbar onset have a higher prevalence of...
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Hi friends,
I know it has been awhile since posting. So much has happened since my brother first received his diagnosis. We went for a second opinion - same diagnosis was given. The second doctor actually told my brother.....What you are dealing with is very serious - if there is anything...
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On Wednesday Jim had his 3rd ALS Clinic appointment. The day started out with a commute of over two and a half hours to get to the Cleveland Clinic (which is about 25 miles away.) After being over an hour late his first stop was occupational and physical therapy. Interestingly enough despite...
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My resting heart rate is 85 beats a minute, now that i sleep more upright at night i have not had anymore episodes of tachycardia, my blood pressure is always perfect. I never hear much on here about the heart, when i am sick mt heartrate is worse because i have a harder time breathing....I had...
All of the bloodwork, MRI, EMG are in and my dad has ALS. I have known for a little while, but getting the final word was hard for my dad. My mom is still in denial but I know she will come around. My dad is very depressed, rightfully so. I tell him about all of the wonderful people in these...
Has anyone heard, or can anyone find, new care guidelines for ALS?
One of our facebook friends mentioned it in reference to PFT (pulmonary function test) levels for needed for qualifying for a bipap. There is one standard of care, which is not dependant on which insurance you have. But my...