I saw the pulmonologist this week. They did an arterial blood gas and spirometry. They have stopped doing the full up Pulmonary Function Test because it just wears me out too much and does not provide meaningful information.
The good news is that my arterial blood gas numbers are ok. In...
Hello. I have PLS and my breathing is becoming progressively worse. I took a pulmonary function test and the result was severe restricted lung volume. On bad days, which are more common than good days this year, I'm short of breath and have low energy. I have a Bipap machine at home that...
Hello everyone,
I'm a 36 year old male and have been experiencing some weird symptoms lately. Around July or August of last year I started having twitching in my eye lids both right and left. I then noticed random twitching in my biceps and legs. Either the twitching went away or I just did...
Really dissappointed in alot of the neurologists in the penn amd jefferson hospital system o was told I was fine and I.shoild seek psychiatric help by 3 of them and I sae 6 total this summer they all blewe of because all emgs were good but I told everyone of them that my breathing was affected...
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Hi first of all I fully respect and pray everyday for all the people asssociated with this disease I truly mean that my.name is john I am absolutely.devestated saddened and angered of what im experiencing after beong in tip top.condition for a longtime by being an avid basketball player and...
Hi Everyone...I just want to check and see if anyone in our situation had any opinions on what the best BiPAP option or kind is? Last week at my last MDA clinic visit they said I need to consider getting one as soon as possible because I guess my Pulmonary Function Test results were "severe"...
So Tim had his pulmonary function test and was told he was functioning at 36%. I am so disappointed, and I can see the hurt in his eyes. We still haven't seen the Respiratory specialist, so I am hoping that he will have some good advice. I guess the DPS is out of the question, but will be...
Hi, I hope this is an appropriate place to post this. Four years ago my dad started having drop foot and other symptoms in his body, including twitching. For a year they doctors thought it was a pinched nerve and other things. By the next year he was experiencing weakness and difficulty walking...
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Hello All,
I went to my first ALS clinic appointment at the VA Hospital in Minneapolis, MN.
1st off let me state that the level of care I received there, for the most part, was as good as or better than the ALS clinic at the Mayo Clinic. They both have their good and bad points, but I was...
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In 2009 I started to have bad headaches. If you were to split my head into quarters, the pain was on my left front side across forehead and behind eye. Neuro diagnosed migraines. Aprox 1 month later L eye lid droopy and was unable to open. I went to a Nerooptic: treated with medrol dose pack...