progression

  1. P

    Bulbar Specific Questions - Old Thread Closed

    Hello - I have posted before about symptoms (https://www.alsforums.com/forum/do-i-have-als-als/38110-follow-up-questions-old-thread-closed.html) and my experiences thus far. I am posting again because I am currently away from home and do not have access to a neuro. I was hoping to get some...
  2. N

    Medical Cannabis for Symptom relief

    New to the forum, I was diagnosed 11/21/16, and have been using THC and CBD to combat the daily symptoms. I have been taking high concentrations of both daily, and am seeing the progression slow a bit. I vaporize and smoke since I still can. I'm assuming my fellow PALS want to know what...
  3. S

    Behavioral changes

    My wife was diagnosed two years ago, and the progression has been quite fast. Right now she is almost completely immobile, has a PEG and a vent since a little more than a year. She used to be really smart, both in the academic and the emotional sense, had a great sense of humor, and used to be...
  4. D

    NP001 updates?

    Just wondering how others are doing in the study. Hubby just had his 3rd infusion. His energy spiked afterward and lasts most of the month but it hasn't stopped his progression at all. I actually feel like it's sped up a bit since he started the trial.
  5. N

    It's been 13 months...

    Hi Everyone, It's been 13 month's since my husband's diagnosis. It's been a really long time since I've posted on here. I just wanted to update everyone on how everything is going, but first I would like to THANK ALL OF YOU :) You were my support system with your encouraging words of wisdom...
  6. R

    Worried I might have ALS

    So, Ive been worried about the possibility that I have ALS. Increasingly extensive research has only reinforced this in my mind. Im 24 and I've been experiencing fasiculations for about 4 months. They arent localized and have been all over with varying intensity (oftentimes the ones in my neck...
  7. Z

    Beginning to worry

    Hello everyone, First off I want to acknowledge how appreciative I am of any replies this may receive. I have been a viewer of this forum for awhile and see the great lengths you all go to to ease people's minds and/or provide the best information possible. I have finally decided to ask my own...
  8. D

    Very Aggressive ALS

    My 70 year old brother in law went from having drop foot to being on a ventilator in about three months! He had been seeing doctors during the progression, but ALS wasn't diagnosed until late April. After three weeks in ICU, he was moved to an acute care hospital where has spent two weeks...
  9. sleepy

    ALS sucks

    Checking in, if anyone remembers me. My progression has been fast. Dx Jan 16, now no walking, almost unintelligible talking, typing with one finger. Feels like if I lose my typing I might lose myself completely. I tried eyegaze but it couldn't track my eyes through my glasses. My breathing and...
  10. P

    Possible diagnosis

    Hello to all lovely people here. Firstly, I want to apologise in advance for my not so perfect english, it is not my first,nor my second language but I will try to be as clear as possible. For 2 months I have hestitated to post on here because I didn't want to intrude before someone actually...
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