progression

Hi to all, after 5 days stay in ALS clinik in Germany, I was finally diagnosed with bulbar onsen ALS with sensory involment... The professor told me that when the people are young there was more evidence of widespread muscle wasting in onset with sensory stuff.... I also have tongue wasting...

Hi, my mom recently (8/2/2017) diagnosed as ALS by neurologist in Santa Clara Valley Medical Center (Jeffrey Fraser, MD) She had a first symptom of weakness on her left ankle and few times of loosing balance on April 2016. Before the symptom, she fell down from the chair while she was wiping...

I'm curious to hear what other PALS do for routine blood tests after they have been diagnosed. I do Comp. Met Panel and CBC every six months. I also do TSH every six months due to Hashimoto's (I use iodine supplements to get back from hypo to normal). I also do a C-reactive protein every six...

My wife’s doctor doesn’t want to place a PEG tube. Today the doctor told me I might want to get hospice involved. I’m fully wrecked crying my heart out. Here’s how things happened… My wife started showing symptoms 1/16 and was diagnosed 11/16. She lost both her legs 3/17. Things seemed to slow...

Hi all, Haven't posted in a while, just living life. My husband continues on his slower to average progression. He is extremely thin, but walks, talks and drives (all barely). No major assistance mechaisms have been entertained or put into play or desired at this time. He is a "don't want...

Hello to everyone here. I was hoping to get some feedback on how bulbar onset has progressed in your experiences. I understand that every patient is different and some symptoms may manifest earlier than others. I say this because I have been having increasing difficulty over the past few...

My son is 13 and has had some weird symptoms. Here's a list and explanations: Urination: he has the urge to pee a lot but says it doesn't bother him when he doesn't think about but he thinks about it all the time Breathing: He has breathing problems trying to sleep but says again only when he...

Howdy everyone, my name is Greg. It seems there is another Greg Mandell here since the username gregmandell was taken :P My father got diagnosed with ALS when he was 65, started in his right foot. I have lurked this forum for a while since he was diagnosed in 2011. I still lurk the DIHALS...

Hello, again, my name is Mario and I previously posted on this forum around October of 2015 about my growing concerns of having ALS. Up until to that point, I hadn't had an emg test to confirm or disconfirm my fears of this disease, and I finally managed to get myself tested on June 29, 2016...

Hi, I've heard a lot about not letting your PALS fall, that after every fall it speeds up progression. I need to know at what point should an assistive device be used? (cane, walking stick). My PALS tripped over the corner of the area rug that was sticking up this morning and crashed to the...