problems

  1. B

    Question

    Hi im a 29 year old male my story starts with one day in may 2018 i notice twitching in my calves then few weeks notice them in my arms , scalp, tounge, and eyelid not constant maybe a few pops Over time my right leg felt stiff , felt like it would buckle and heavy feeling also if i would rub...
  2. C

    6 months in, new symptoms

    I posted to this forum a few months ago after my symptoms started. At that time I had neck stiffness and pain, body wide twitching but constant in my lower legs and some swallowing problems. Symptoms have come and gone over the past 3 months. My neck pain and stiffness dissipated. My...
  3. T

    Dad Dancing Again in Heaven

    My Dad slipped away peacefully on Wednesday, Jan. 30. ALS took his ability to move, to swallow, to speak, and finally to breathe, but it didn't take his joy or his strong faith. Diagnosis was the end of December 2017, though he'd had symptoms for at least two years prior. Possibly...
  4. M

    Questiion about EMG

    Hello to everyone there fighting dificult times. I Am a 46 year old woman from Spain Who has some symptoms and has some doubts about if these could be of ALS. I Will try to tell you my story short so as not to bother you with boring details. In September 2017 I started having pain and...
  5. N

    Hello

    Hello everyone, I wanted to introduce myself ... My name is Natascha, I am 41 years old and mother of two children. In 12/2000 ALS was diagnosed. Since the course at I am very slow, I am the second opinion in 04/2018 in another ALS special clinic. Unfortunately, the ALS was also confirmed there...
  6. Gmr8691

    Some very annoying symptoms.

    Earlier this year i ended up in the hospital with rhabdomyolisis brought on by a very underactive thyroid. Well ever since then i have felt like crap. Tinnitus, fatigue, unbalanced feeling and some other issues. Some days worse than others. This jas been going on since june 2018. On christmas...
  7. B

    Concerned about ALS

    (Sorry i first posted it by error in the general feed) Hello everyone, first of all thank you for everyone contributing to this forum because I find it quite helpful to read about individual experiences. I am writing here as I have been experiencing different health problems for a while...
  8. KarenNWendyn

    Senior joke (clean :-))

    Bob, aged 92, and Mary, aged 89, were excited about their decision to get married. While out for a stroll to discuss the wedding, they passed a drug store. Bob suggested they go in. Bob asked to speak to the pharmacist. He explained they’re about to get married, and asked, "Do you sell heart...
  9. S

    Genetic testing??

    My husband was dx. In dec. 18 we have very little past family history due to the fact that his maternal grandfather was adopted with no records and his paternal family have all died at young ages ( under 50) except for his father as of now who is 48. Reed is 28 and I am just curious if we...
  10. I

    Drugs and PT for PBP?

    I was diagnosed with PBP a year ago this week. I frequently check in and read most of the posts for the day. It just dawned on my husband and I that none of the four neurologists I have seen have mentioned physical therapy or drugs that might delay the progression of this beast. Until about...
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