problems

  1. A

    Do I have ALS? Worried

    Hey guys, I am 17 year old and constantly worried about ALS. I had twitches all over my body since the past 4-5 days and I can literally feel them. As soon as I look towards them they just disappear (most of the times). From the past two days, I am having a bit of dry mouth and numbness near my...
  2. R

    Milk of Magnesia

    Hi again, I bought the milk of magnesia today for constipation. Maybe this is a stupid question, how often should I take it. Every day? I usually only have a bowel movement every 3rd or 4th day normally. Also, I really want to read your comments on this and other problems. I do not know...
  3. jethro

    Difference in mobility according to temperature

    Before i was diagnosed with als, i had no problems in mobility. desert, north pole, whatever... now, when temperature falls to app +5 degrees celzius, i can not move. few steps, and that is all. dont even thinking about snow and ice. is it specific for me, or everybody feels the same? i seem...
  4. R

    Bowel & Bladder problems

    My muscles started atrophing (sorry wrong spelling) with my foot and has progressed slowly up one leg to my bum. I am starting to have trouble with my bowels and bladder. Is this to be expected? What do you suggest to take daily, weekly?? for my bowels?
  5. Buckhorn

    PEG placement with FVC of 31?

    So, my husband has just recently agreed to a PEG placement, and we are actually scheduled for it 12/5th. He has no problems chewing, swallowing or talking at the present time. However, his respiratory state has continued with a predictable decline. I have read here on the forum that PEG...
  6. R

    Afraid

    For 2 years now i have the following problems (excuse for the faults, come from Holland), my problems; -symmetrical weakness in legs, a bit in arms, a litte increases in 2 years, look thinner -little stifness upper leggs, specially walking downstairs -problems with swallow foot, liquids going...
  7. K

    Extreme dysphagia, diagnosed with "unspecified autoimmune", would like some input

    Extreme dysphagia, diagnosed with "unspecified autoimmune", would like some input I have done the math, and I'm a statistician - getting diagnosed with ALS is extremely rare. For someone like me, younger than 30 (I am 29), it's even more rare. On top of that, "bulbar onset ALS" is an additional...
  8. G

    Still in «limbo»

    Dear all great people in here!! I posted here in march for getting advise on my Emg results. I am still in the limbo have had one more Emg since last. This was abnormal and showed spontanious activity but not enough to diagnose. The worries are my symptoms are getting Worse and I am so worn out...
  9. Y

    Medical Update +Confirmed atrophy, knee pain, hip grinding, and leg weakness...

    Hello everyone, I went for a checkup about 5 weeks ago. I had knee problems at the time, with buckling in either knee. Though AT THE TIME I did not have any issues with strength, There has been an increase in buckling in both knees (sporadic). My left thigh has atrophy and when I walk I feel...
  10. F

    Mum diseas,strange situation

    Hello all and this is my first post on the forum. Sorry for my unperfect english but i'm italian... :-) Let me introduce my questions... 4 years ago my mum started to have some problems with left leg and especially in walking. She put her foot in a strange way,like if she hasn't the control...
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