problem

  1. chally

    Confused report

    After seeing pulmonologist dr I am a little confused. He says my last testing indicates that my co2 it normal at 41 range being 35-50 However my Oxygen is low at I think he said 67 . I know these are just numbers and I intend to not concern myself to much about hem but here's the thing. With...
  2. TomSanti

    Wife and I are losing our minds over temperature

    With all the thousands of posts and replies on this board I could be divorced by the tiime I have searched so I apologize if I am being redundant and have no problem should this be moved to a different thread. Here's the deal, I am in my late 50s, my wife in her mid-50s she is hip deep in...
  3. swalker

    Travelling in Yellowstone - Fall 2017

    I am writing this from our trailer at Madison Campground in Yellowstone National Park. I will post this message to a new thread when we get to cell phone coverage so you can share some of the adventures we are having. This has been an interesting trip. I debated long and hard about cancelling...
  4. Tedstehr

    Excessive hope

    I simply cannot get too upset about my ALS. Could this be a mental problem? 1) People die everyday from hurricanes, accidents and horrible cancers. I am alive today, and I may be alive ten years from now. 2) None of my family have suffered from bad health, mental illness or accidents. I can't...
  5. B

    Abnormal EMG, no clear diagnosis, looking for emotional support

    This thread is not about asking whether I have ALS. After this past week, I've started to accept that I probably do. But I'm looking for emotional support going forward. My symptoms started in April with unexplained muscle soreness in my right bicep and thumb. I saw a neurologist: no weakness...
  6. N

    BiPap mask for a bulbar onset patient?

    Hi Everyone, My father started with a BiPap machine last week, and it doesn't seem to work. He is bulbar onset, and right now can't keep his mouth closed other than by holding it with his hands, which he can still do, but it's not easy even now (and his hands are weakening). He has to press...
  7. J

    Oh no not another twitcher

    Hello, first of sorry for any bad grammar, I'm from the Netherlands so English is not my main language. You must all think oh no, not another anxious twitcher. But I'm afraid here I am. I was wondering if you guys could shed some light on my problem, which is twitching and twitching alone. I...
  8. L

    Update on symptoms

    Hi again everyone, I posted on here a couple of months ago regarding concerning symptoms but the thread is now closed; I feel my symptoms are progressing so am posting an update in the hope that someone can give me their insight as I remain very concerned. On my last neurologist appointment 3...
  9. C

    A sling for freestanding overhead lift system?

    I have an overhead freestanding lift system. As it turns out it is too big for the bedroom at 11.5 ft. long. The problem is that the feet/legs are 4 ft wide and no matter where we put it, it will block a doorway. We've decided to cut it down and reassemble a shorter length for our bedroom and...
  10. Tedstehr

    Edavarone in Canada

    I am creating this thread as a discussion on how to get Edavrone in Canada, and what I have discovered. Here is what I have learned so far. Mistubushi Tanabe Pharma is the creator of the drug. It is ultimately up to them if they want to sell the drug in Canada. If they do, it sounds like...
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