pressure

  1. D

    Communicate with Dr & Advice

    Hello All, First of I would like to say thank you for opening this forum to people like myself that dont know whats going on with us and are scared sh-less. I think its great that your open to helping both people with ALS and those that are not yet diagnosed or that are just suffering from...
  2. T

    Scared and looking for answers...

    Hello, I'd like to share my symptoms and hear from this great community. I worked a very tough job, doing 13 hour shifts on my feet lifting and moving heavy weight. I wore asics tgat were originally awesome, but wore them down to nothing. I tend to push my own issues aside and focus on my job...
  3. D

    Help/advice about symptoms please!

    Hi everyone. I have read through so many threads before joining and I think this board is a wealth of knowledge and a breath of fresh air from all of the scary stuff on google. I’d love it if you could offer advice on my symptoms, which seem a bit quirky to me. Any feedback is greatly...
  4. C

    scared and need to vent.

    I have all the symptoms, increasingly bulbar to be specific. I have been in and out of the hospital the past couple of weeks, I have the follow-up appointment with Neuro on Wednesday. The first time he saw me he took ten minutes and then told me it was probably stress. I know why its because I...
  5. W

    Beside ourselves, please read.

    Hi All, I was wondering if you could give me your opinion on my husband. For about a year he was having issues with his back. He tried physical therapy and epidurals. Nothing seemed to help. Fast forward to a couple of months ago...we both started noticing him limping. He noticed that his...
  6. D

    Trilogy with Passy-Muir valve?

    I was recently switched from an LTV950 to a Trilogy. I have always been able to speak easily on the LTV with my cuff deflated. An additional 5 of PEEP from an inline valve allowed more than one or two words per breath. With the Trilogy, I am back to one or two words and it a horrible step down...
  7. A

    New here Help please.. loss of muscle function

    Hi everyone. I am on this form for my Mom who has been going through so much in the last few years. It all started back in Dec of 2016 when she lost all movement from her neck down. (For 8 days) all tests came back normal (MRI, CT scan blood work ect) She has since been losing movement...
  8. blitzc

    Low Blood Pressure incident-very scary-is this normal?

    I know there are many of you who possess more expertise than I. Today I had a very scary situation getting ready for the day. Doing my final bathroom preparations I became more shaky and wobbly than usual. I went downstairs right away to get breakfast and sit down. Before I could get...
  9. H

    Second visit here - seeking guidance on new, troubling symptoms

    Hello All: Before I begin, I want to say two things: thank you and I’m sorry. Thank you for the peace of mind you bring to scared individuals like myself each and every day, despite the great challenges you face. That selflessness amazes me. Secondly, I want to apologize for starting a second...
  10. Q

    Do I have ALS (Amyotrophic Lateral Sclerosis ) my symptoms and blood tests, help pls

    Age: Turning 22 Height: 5'11" Weight: 147lb, lost 23lb in last 3 months but not entirely sure why, could be just eating less or something less, not sure Gender: Male Medications: No Smoking/Drinking: No Pervious illness: None really, I never got sick other than the "common cold" Duration...
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