preparation

February 18, 2009 @ 10:24 pm my Mom had passed away. She has had ALS for 3 years before suddenly things accelerated rapidly. As I write this in memory of her, tears run down my face - what a brave women she was. Not the loss of her legs, voice or difficulty breathing ever caused her to complain...

Hi, my name is Melanie and I'm 22 years old and experiencing what I think are bulbar symptoms. The symptoms have appeared within the past month with difficultly pronouncing "st" "sh" "t" "ed" sounds. I also have difficulty swallowing sometimes. I have also noticed that my tongue and lips are...

Hi all... I've been away for a while. Things have gotten more complicated here. My husband Andres has had a very fast energy loss in the past month along with taking the decision of letting go of eating through his mouth. He has a feeding tube but he would have a little juice or chocolate milk...

I am reluctantly a new member here. My dear mother, age 57, was diagnosed with ALS a few weeks ago and I was shocked at how casually the doctor mentioned it without any type of emotional preparation. Since then, we took a family vacation to Cuba and are waiting for our second specialist...