Hello wonderful forum!
Sometime ago, a Vet posted on the forum that he had received his bathroom grant finally and was beginning the construction process. I really need to talk to him and to all of you. We completed paperwork with the VA on June 10, 2011 for the bathroom grant and as of...
They are building me a bus shelter! This is big news; but first to other things.
My Favourite Wife and I are blissfully rattling our way south to Melbourne, on a glorious afternoon finally hallmarked Spring after an icy, grey and protracted winter. Generous respite provision for our Little One...
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I type an awful lot these days. Every conversation is typed (and how unfair is it that non-vocal people have to spell correctly when they ‘talk’?). Emails, essays, business, friendship; everything comes back to typing. And happily I’m a pretty fair typist. Straight from the HSC exams I...
Hey Guys
I have this new idea for a restaurant which I would like to to bounce off of you to find out if any of you think it is a good idea.
The restaurant would serve pretty standard American fare. The novelty will be in the food preparation. Since I've lost the use of my hands and arms...
Well.....I got away for the weekend with the boys! My hubby's two sisters came and stayed and I had a nurse for all the transfers into and out of bed. My anxiety was pretty high with all the preparation in order to get out the door. HOwever..had an amazing weekend with the boys and my...
Does anyone understand how to get helpers in the home? Currently, I have a CNA that comes for about an hour every morining to help me get my husband up, bathed and dressed. She started coming when physical and occupational therapy started. Will that stop when we can no longer get recertified for...
A friend of mine is definitely risk-inclined. To look into his eyes, the bright centre of his vaguely unkempt person, is to peer over the rim of the cliffs and cascades against which he continually pits his mettle. A climber, adventurer, horseman; he's the fellow who gets a mechanic mate to cut...
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Has anyone signed onto and used the "The myMuscleTeam website is administered by Lotsa Helping Hands" as is adverised in the MDA/ALS magazine
"Launched in January, myMuscleTeam is a free, Web-based service offered by MDA to help people with muscle diseases and their caregivers develop a...
Just want to share with everybody a thickener that I found. "Simply thick" it's a gel based thickener. There is no graininess, cloudiness or aftertaste. . The pre-measured packets allow for fast and easy preparation of beverages(both hot and cold). Each individual packet is designed to thicken...
Today my husband was diagnosed with Bulbar Onset ALS. You all know what we are going through....every emotion imaginable. I posted in June under the ? ALS forum and I want you to know that this forum has given me such hope and allowed me to be a strong advocate for my husband because of the...