preparation

  1. KimT

    Power Outage Preparation

    Some of don't live in single family homes so we must find alternatives for backup batteries and keeping DME charged. I live in an area that gets hit with hurricanes. We do have power outages and some last several days. I'm wondering what everyone does in case of a power outage. Both of my...
  2. Chincoteaguer

    Back home from hospital

    I apologize for the length of this post but I hope it might help others who have to take their PALS to the ER. We were in the hospital from Thursday morning until noon on Saturday. As I have posted previously the trip to the ER was recommended by our health care nurse based on a false oxygen...
    • Chincoteaguer
    • Thread
    • allergies back bed breathing caregiver feeding feeding tube foot health hip hope insurance nurses oxygen power preparation problems travel trip
    • Replies: 6
    • Forum: General discussion about ALS/MND
  3. KimT

    Keep Constipation in check

    As a result of chronic constipation and going off psyllium for a few months, I developed hemorrhoids. Recently, I discovered bright red blood so I went in for an exam. The gastro found an anal fissure and scheduled me for a procedure to have a closer look and treat the hemorrhoids at the same...
  4. KimT

    Hemorrhoid Banding Procedure - CALS/PALS

    OK, This has been going on for over a year and I vowed to take care of my teeth first, then PT for my knee and torn rotator cuff. Has anyone had experience with removing internal hemorrhoids via banding them off and letting them die and fall off? It doesn't matter if you're a PALS or CALS. I...
  5. B

    82 year old grandmother diagnosed unexpectedly after Fall

    My 82 year old grandmother was diagnosed August 1st after falling July 19th. When we took her to the hospital to make sure she hadn’t broken anything (which she didn’t). I never imagined this diagnosis. In the ER, she couldn’t hold or lift her right arm at all and she was in able to lift her...
    • Blairefree35
    • Thread
    • arm back bed bulbar bulbar onset clinic confusing diagnosis emg falling lift mobility neurologist neurology onset pain peg preparation speech swallowing test testing transfer walker wheelchair
    • Replies: 3
    • Forum: Newly diagnosed
  6. D

    Fecal Transplant

    Okay... I know it's been discussed a bit before in the forums, but not at length. But the more I read about the newly found gut-brain connection, the more I believe that a series fecal matter transplants could slow or stop some types of ALS progression. I know, call me crazy. Has anyone heard...
  7. M

    Resisting therapy

    Hello all, I don't post here often but I have been a member of this community since last year. Some friends and family have asked if I have considered going to therapy to help me deal with my partner's ALS but I keep resisting. I had a major depressive episode in 1999 and went through a...
    • Manhattanite
    • Thread
    • als back cals depression exercise family free grief happiness life preparation sad taste therapy
    • Replies: 2
    • Forum: Current caregivers
  8. Barbie

    Spreading His Ashes <3

    Over Memorial Day weekend my kids and I all flew up to Maine to spread Lonny's Ashes. He was raised in a small town on the coast and considered that his home so I decided that would be a good place for him. I rented a house in the town he lived in and we had a lovely time walking around and...
    • Barbie
    • Thread
    • als back dad death early eye family grief happiness hope kids lonely memorial night preparation sad story stress video work young
    • Replies: 13
    • Forum: Past caregivers
  9. gooseberry

    compensation

    Something I didnt know about compensation....you as the surviving spouse if listed as dependent get the compensation due to the vet for the month they die. Also they automatically send you 2k for burial and miscellaneous expenses. This is in addition to the preparation and funeral home...
  10. A

    Cost of nurses

    I am currently taking care of myself during the day, but soon I may not be able to do so and my wife may not be able to take care of me 24 hours a day. I wonder how much is the average cost of a nurse. (I am in California) At first I may need someone without much preparation, but later on, if...
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