preparation

  1. Chincoteaguer

    Back home from hospital

    I apologize for the length of this post but I hope it might help others who have to take their PALS to the ER. We were in the hospital from Thursday morning until noon on Saturday. As I have posted previously the trip to the ER was recommended by our health care nurse based on a false oxygen...
  2. KimT

    Keep Constipation in check

    As a result of chronic constipation and going off psyllium for a few months, I developed hemorrhoids. Recently, I discovered bright red blood so I went in for an exam. The gastro found an anal fissure and scheduled me for a procedure to have a closer look and treat the hemorrhoids at the same...
  3. KimT

    Hemorrhoid Banding Procedure - CALS/PALS

    OK, This has been going on for over a year and I vowed to take care of my teeth first, then PT for my knee and torn rotator cuff. Has anyone had experience with removing internal hemorrhoids via banding them off and letting them die and fall off? It doesn't matter if you're a PALS or CALS. I...
  4. B

    82 year old grandmother diagnosed unexpectedly after Fall

    My 82 year old grandmother was diagnosed August 1st after falling July 19th. When we took her to the hospital to make sure she hadn’t broken anything (which she didn’t). I never imagined this diagnosis. In the ER, she couldn’t hold or lift her right arm at all and she was in able to lift her...
  5. D

    Fecal Transplant

    Okay... I know it's been discussed a bit before in the forums, but not at length. But the more I read about the newly found gut-brain connection, the more I believe that a series fecal matter transplants could slow or stop some types of ALS progression. I know, call me crazy. Has anyone heard...
  6. M

    Resisting therapy

    Hello all, I don't post here often but I have been a member of this community since last year. Some friends and family have asked if I have considered going to therapy to help me deal with my partner's ALS but I keep resisting. I had a major depressive episode in 1999 and went through a...
  7. Barbie

    Spreading His Ashes <3

    Over Memorial Day weekend my kids and I all flew up to Maine to spread Lonny's Ashes. He was raised in a small town on the coast and considered that his home so I decided that would be a good place for him. I rented a house in the town he lived in and we had a lovely time walking around and...
  8. gooseberry

    compensation

    Something I didnt know about compensation....you as the surviving spouse if listed as dependent get the compensation due to the vet for the month they die. Also they automatically send you 2k for burial and miscellaneous expenses. This is in addition to the preparation and funeral home...
  9. A

    Cost of nurses

    I am currently taking care of myself during the day, but soon I may not be able to do so and my wife may not be able to take care of me 24 hours a day. I wonder how much is the average cost of a nurse. (I am in California) At first I may need someone without much preparation, but later on, if...
  10. swalker

    Final Resolution to my Wheelchair Brake Problem

    In previous posts, I have described some harrowing incidents due to problems with the right brake on my Permobil C500 wheelchair. We have been chasing this problem on and off since about June. In September, we did a field repair (with the folks from NuMotion on the phone) while on our fall...
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