Wife has Bulbar Palsy. Want to use K-Laser Class IV or Class 3b Avant LZ30x on the medulla oblongata. Is the the medulla oblongata surrounded by the backbone? Would it be easier to LLLT from the front over the adam's apple at an angle toward the Medulla Oblongata? What wavelength, power...
Good evening everybody
We lost my father a couple weeks ago to ALS. We were lucky enough to get so many of the different types of equipment that a person could need. While me and my brother do need help with expenses (2 kids under 30 taking care of our dad on our own) we realize the absolute...
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Today I had my first clinic visit at the Huntsville ALS Clinic. We were there from 9:30 AM til 3:30 PM. But I saw everyone: PT, RT, OT, dietician, speech therapist, and social worker and MD. And I was evaluated for a power wheechair. They also recommended a Trilogy. I am wondering if anyone has...
At some point in the near future I believe that my mom won't be able to get in and out of the car (it's a big struggle for her now).
She has a car (she's not driving) that we could sell and potentially get a minivan that would accommodate a power chair.
Can anyone give any advice on anything...
Hi Everyone,
Some of us here are from other places in the world.
We don't speak English perfectely and on this Forum
abbreviations are used intensively.
I know Google is my friend, but it is often ambiguous
and sometimes it fails.
example: PALS has 7 meanings in wikipedia. I still don't know...
Hi, I've finally joined after lurking for a few months to get lots of useful information and inspiration.
My husband Douglas was diagnosed with ALS in May 2015. His arms and hands were affected first and are now mostly useless. He's now having trouble swallowing and talking and had a PEG tube...
Hello friends in common!
My husband has Bulbar onset ALS diagnosed 4/2013. Has a DPS and feeding tube. Eats through tube, can still talk some, can walk to the bathroom (with leg braces) with walker otherwise needs the power chair. Is all there mentally and a very intelligent man. His...
I have been using a wheelchair for 9 months and think I have learned enough to make it worthwhile sharing a few things.
For background, I now have 3 wheelchairs.
Primary chair is a Permobil C500s VS (I have over 650 miles on it now)
Backup chair is a Permobil C500 Corpus 3G (I have only put...
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My PALS (bulbar palsy, PEG, no food or drink by mouth) got his Devilbiss suction machine a few months ago, tried it a couple of times and decided spitting was more efficient. He's been spitting/wiping ever since and struggling with thick, pasty phlegm however he can. We had the technician come...