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  1. KimT

    Happy Easter

    Yesterday, Good Friday, I was supposed to go to a 3 pm service. We had an issue in my wing of the condo and lost power from 8am to 4pm. I had to transfer all my groceries to the social room refrigerator and about 2pm we got hit with a very bad storm. I missed the service. There was another...
  2. J

    Please do not be too quick to say NO to possible ALS diagnosis

    About 3-4 years ago I came to this forum and asked the dreaded question "Do I have ALS". I had some fasciculations and cramping in my feet, balance issues, spasticity in both legs and slight speech changes. I was assured by members that my symptoms were NOT symptoms of ALS and I went merrily...
  3. D

    ER for bowel movement?

    I can no longer stand and got a hospital bed a week ago. Don’t have the hoyer lift yet. It has been several days since I have had a bowel movement. Have asked for palliative care and should be approved. In power wheelchair 24/7. Suggestions please.
  4. D

    Palliative Care

    Does pallative Care, like hospice, disqualify one from Medicare paying for certain items like a power wheelchair?
  5. D

    Navigating in a Power Wheelchair

    Have had the chair 3 or 4 weeks. Have ramp now. How do I position the chair to go up and down ramps and curbs?
  6. P

    My Experience with Twitching

    Mid 30's male, grandmother diagnosed at 73. Began twitching in arm in early December, went away for a few weeks, came back in late December in left calf and r. arm, and felt like it was spreading each week: right calf, thighs, neck etc.. I twitch somewhere in my body every few seconds, for...
  7. KarenNWendyn

    Power wheelchair and restaurants

    What do most people do? Most restaurant tables are not tall enough to accommodate my pwc sliding underneath them so that my legs don’t bang into the edge of the table. At home, I have a counter height table, which solves the problem. I’ve used the bar seating at restaurants when it’s just one...
  8. M

    Living will

    I went to my attorney to have my living will redone. I have a power of attorney. I have made the decision that at the time of my choosing I may decide to evoke vsed.... I want everything spelled out so my healthcare surrogate/ power of attorney doesn't have to do any thinking. Only follow my...
  9. T

    Rectal burning sensation (sorry to be so blunt)

    Does anyone have trouble with rectal burning made worse when sitting in the power chair? Multiple cushion combinations have been tried and every over the counter remedy has been tried. Prescription level lidocaine and pain relievers including Norco. I'm currently on gabapentin and Lyrica in...
  10. E

    Won't go to the Hospital Bed!

    Cals here. Husband dx in 2013. For the last two years, he has lived in a recliner (sleeping there). Of course, goes to the power chair when need be. But, now he has zero neck muscles and needs suctioning several times a day. We have a wonderful hospital bed with all the bells and whistles...
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