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  1. M

    second torpedo

    It is probably my fault. Like the rest of you know if you get behind it can be a struggle to catch up. We are struggling with bathing, and getting me up if I fall. It is a lot harder than it should be but we are still getting by. I can still make transfers and walk short distances, but when...
  2. twitchykitty

    Hospital bed vs mechanical bed

    Hello everyone I'd love some advice from pals and cals out there who have opted to get a standard electrical bed instead of a hospital bed I thought I'd better ask before forking out good money for it I'd prefer to stick to a double bed as I can't roll otherwise, I want to keep things as anti...
  3. 1

    I have no where else to turn

    Yes, I've had two EMG's (one full body, and one single fiber on neck.) and yes I've seen 3 neuro's that have told me it isn't ALS; However, My symptoms continue to persist. I feel like I'm all alone in my head. I am NOT making these symptoms up. I am starting to get a buzzing/throbbing/crawling...
  4. W

    Symptoms persist 15 months later….?

    Brief background. I am a 31 yr female with one sweet toddler running around. Last August 2014 I noticed that my left forearm was sore went to my PCP and was referred to a neuro. I think they were thinking ulnar nerve stuff and at the time I was toting around a big baby so it definitely could...
  5. T

    16 Year old with Fasciculations for 6 months, very worried.

    I have posted about this before, but I would like to give an update. I have been having these fasciculations for 6 months, beginning when I was still at the age of 15. The fasciculations can range from all over my body. From head to toe literally. It can be in my finger, then to my toe, then my...
  6. A

    couple questions extremely worried

    I would like to start off by saying thank you to everyone on here that spends there time to help others with there questions.My problem is im 15 year old male and have horrible HA and ever since I found out about als, by searching twitching, that all I can think about.The reason im worried is...
  7. ShiftKicker

    First clinic-so many drugs prescribed!

    Hello- I had my first ALS clinic appointment yesterday. It was very overwhelming and made me cry, I won't lie. I have to admit though, it wasn't terribly informative about my personal progress, nor did they seem to be able to give me any idea of what to expect over the next little while. Only...
  8. affected

    Resource If you've just been diagnosed - what to do now?

    This diagnosis is worse than having a bucket of ice water tipped over your head. The detail of this sticky can be summarized by these steps which are not necessarily in the same order for everyone: 1. Absorb the shock 2. Find support systems 3. Tell people as appropriate 4. Put legal affairs in...
  9. C

    Leg Weakness, Possible Atrophy, Twitching

    Hello, First time poster here. I'm writing now because of the trouble my left leg has been giving me over the course of the past year. I'm 18, which is far younger than the mean age for this disease, but my symptoms are cause for concern, in my own opinion. So let's get into those... My...
  10. S

    What would you want your caregiver to know?

    Hello All, This is my first post on this site, I'm not sure how to properly do this but I'm asking for help from anyone willing to share their experiences with my and my family. In January my family and i found out that my dad has ALS. He's in his mid 60's and has always been a strong...
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