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  1. S

    Phlegm issues

    Hi friends! My mom was diagnosed in Feb/17 and seems to have bulbar onset although the doctors haven't said. Her first symptom was hand weakness and now she has slurred speech, decreased FVC and just recently issues with swallowing. We live in Canada and are getting the generic version of...
  2. T

    hospice questions

    I'm not sure if this is an appropriate thread. I am not a caregiver yet but my mom was diagnosed in January 2016. Her decline has been pretty quick with rapid deterioration in respiratory function. She is on the Trilogy 24/7 and is completely tube fed. She is weak but still mobile and spends...
  3. F

    Bulbar fear

    I didn't want to be back on this site but I have had symptoms that are very concerning. My ALS fear started almost a year ago with fear that my left hand was atrophying, I have had sporadic twitching, and other fears of other muscles cramping but nothing to severe. For almost a month now I...
  4. N

    My daddy got bulbar ALS - and a question about Nuedexta...

    Until two weeks ago we were hopeful that it was 'only' a progressive bulbar palsy. But no, it's ALS - he's been diagnozed about a year after his first symptoms. He lives in Poland, and I am here in the US. It hurts so bad to be that far away from him... I am utterly hearbroken... His symptoms...
  5. P

    Worried about symptoms

    Hello, I am a 26 year old male. For the past 4 or 5 months I have noticed my right quad/thigh area significantly smaller than my left (possible atrophy) My right thigh and quad have become increasingly stiff (especially in the morning) making it more difficult than usual to walk/run. I am still...
  6. T

    Is this ALS?

    So for the past month I've been living in fear I might have ALS. I have been having pains in my right hand and a feeling of "weirdness" moving the fingers. There's no tingling and\or numbness, but if feels weird, kinda hard to explain. Also I notice there's a indentation in my right hand muscle...
  7. M

    Stressed and conserned

    Hello, My name is Mike and I'm 38 years old and I've been having some strange neurological, phiscal and psychological symtoms. I would greatly appreciate your knowledge and opinions about this situation. Ill try to keep my story as short as possible and explain as clearly as I can. About a...
  8. D

    Sorry to write here again...

    I start to say that english is not my ordinary language but i hope you understand my writing. I have post a question here before and som pictures of my hands whit possible atrophy. I have twitching all over my body and went to a neuro and was getting an EMG in arm, hand, leg and below my...
  9. N

    Goodbye to all

    I would like to thank the CALS who have stayed after their losses to help us PALS as best as you can. I can name many of you but I'd leave some out. You have made a miserable two years just a little more bearable. I wish for you healing and a return of joy and happiness. And thank you for your...
  10. B

    EMG question

    First of all i want to express how much i respect all of the PALS and CALS in this forum. Thank you all very much for being very helpful and supportive to many people. I am 22 years old, female and no relative (as far as i am concerned) with a diagnosis of ALS. I have noticed atrophy in my left...
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