1. L

    URGENT PRAYER for ALS scientist

    My husband has ALS. My Mother is friend's with an ALS research scientist, named Kris P. ( his actual name was shortened for his privacy sake). -- My son is good friend's with their son -- and they have been friends since grade school. ( the nickname of their son is POPS. Again the actual...
  2. C

    Don't know what to think

    Hi, I'm new here and would like some opinions on my symptoms. To start off I'm a 45 year old female. About 6 months have been having neck problems, stiffness and by the end of the day feeling like my head was too heavy to hold up. Around November I was complaining to my husband and he said he...
  3. S

    Does PBP always show up on tests?

    Hi. I'm new to the group. Nice to have a place to go. Three years ago my sister, now age 60, suffered what seemed to have been a stroke that resulted in slurred speech. The MRI reflected a cluster of irregular blood vessels, thus the stroke diagnosis. It was blamed on diabetes. She lost...
  4. L

    Swallowing issues - a few answers

    about swallowing -------------------------------------------------------------------------------- HI all, I'm a newbie and not diagnosed, but do work with neurological disorders and swallowing. In answer to you question Liz about swallowing: Depending on what muscles are being affected will...
  5. Mike27

    Flu Season

    Hi Folks! Just a reminder for PALS, family, caregivers and friends to get your flu shots. Also consider getting the pneumonia vaccine. It is given in the same manner as a flu shot and lasts for a few years. Another tip is to buy a bottle of hand sanitizer (available at all pharmacies) to keep...
  6. S

    To tube, or not to tube (feeding tube pros and cons)

    Hi there! I am a Speech-Language Pathologist that provides services for inpatients, outpatients, home-health and hospice (jack of all trades, master of none :)). I have been in the field for about 2.5 years, and just recently have had two patient's referred to me, both with ALS. Both...
  7. Al

    Pals Mike and CDNPALS.CA

    Hi everyone. A couple of people have asked how Pals Mike is doing. He's in Calgary and owns the website. Canadian People Living with ALS. He is doing OK and a few weeks ago they thought he had pneumonia but it wasn't. He hasn't been on the computer since Feb. and is unable to look...
  8. Teej

    cold feet? stretches? joint pain?

    My husband has ALS and continually has cold feet. We live in California, so it never really gets that cold, but his feet, even on the 100 degree days, are freezing. Any ideas on what to do for him? Also, does anyone get regular massages or have regular stretching sessions? My husband has...
  9. M


    As i am sure most of you know i have refused a trach however my reasoning or lack of same is not meant to influence. I have just read a wonderful post on BT by Harry AZ and he said i could share it;