pneumonia

My boyfriend is newly on vent/trach. At the hospital we were told by an MD that he will not be allowed to eat or drink again (he has a feeding tube). At the L-Tach rehab the speech therapist gave him mashed potatoes and he aspirated them and then got pneumonia. He eventually went to...

I am Bulbar Onset ALS and I decided to get the Botox shots in my salivary glands to help with the constant drooling. 2 days later, I could not swallow at all. I called my ALS doc and they set me up for an emergency feeding tube. 2 days after that I was in the hospital with pneumonia. Finally...

I'm seeking advice as neither my Pals or Cals reads the forum. I'm a friend of a Pals and Cals. Cals has pneumonia and is in the hospital. Pals is home with a caregiver. Pals is now coughing. They have tried the vest which helps for a short period of time. Caregiver is having trouble...

My mom has been sleeping most of the day since september 15 after a crisis with secretions and saliva where we used the coughing assist. She was able to stay awake for about the time when my brother came to visit about 10 days ago. :) But every day after that, its harder and harder for her to...

I am a caregiver to a 75 year old woman. I've been caring for her for 5 months now so I'm fairly new BUT she is rapidly deteriorating. When I 1st started she had some problems choking but now I puree all of her food for the last month ... this is the info the family has provided and what I've...

The surgery was three days ago and now I am coming up with pneumonia. Before the surgery I consulted a doctor who specializes in breath paralysis patients and he did not see why the cough assist could not be used even right after the surgery. Unfortunately that doctor is out of town and the...

Hi all, My tobii only has " tracheostomy" in its auto complete and since I feel very lazy today that is going to be the catch all for anything related to the operation. So I am looking at getting a tracheostomy and want to try to schedule the optimal time to get it, something early enough to...

Wanted to get some feedback and advice. Here is the deal. My breathing is getting worse, and the home health nurse said there is some crackling noise in the bottom of my lungs indicating fluid. My wife and Roger ( home health nurse) don't communicate well, he talks about potential issues and...

My PALS had a fever last night that made him pretty uncomfortable. It responded to ibuprofen and this morning he's feeling much better. This has happened a couple of times before but last night was more unsettling - he was frightened and felt he was dying (his description). I know fevers can...

I just spent 4 days in the hospital with a collapsed lung and the worst part was a sore butt from the mattress! It started with the sniffles and a scratchy throat. I went to the doctor to see about an antiviral which they recommend right away for ALS people. Turns out that all there is is...