Hi. I am new to the forum. My mom started having symptoms around 9 months to a year ago. Her symptoms were headaches, sleeping all the time, and slurred speech. She saw her family doctor several times and he kept telling her she was just tired. Finally, he sent her to see a specialist. The...
als
back
bulbar
cramps
diagnosed
diagnosis
family
feeding
feeding tube
headaches
immediately
kids
mri
muscle
pneumonia
research
slurred speech
spasms
speech
symptoms
test
wanted
wrong
My dad was a top notch guy. A State Trooper for 33 years, a member of the ski patrol at various ski areas in NY State for 20+ years. He was a wonderful craftsman and a real do it yourselfer. He loved tinkering, fast cars and his Harley. Most of all he loved his family. He retired from the...
ability
als
back
balance
bipap
book
boston
brain
breathing
chair
clinic
dad
diagnosed
diagnosis
early
family
fatigue
feeding
feeding tube
heart
hope
life
locked in
meds
nausea
neurologist
parkinsons
peg
pneumonia
progression
quality of life
research
sma
stages
swallowing
symptoms
vent
vomiting
walker
wanted
Several years ago my grandmother went through several health problems, including a couple heart attacks, alot of hospital stays, and losing her leg to gangrene (not diabetes related). My grandfather (they raised me all my life, so basically my dad) took care of her throughout all of this. He was...
als
back
breathing
breathing problems
dad
diabetes
diagnosed
diagnosis
health
heart
information
life
newly diagnosed
night
pneumonia
problems
research
testing
wrong
I hope some one is awake! I need someone to rationalize this with me. My father has been sick since June (first symptom) with rapid progression, and respiratory failure since oct through dec, where he only has movement of his hands/fingers mostly and his head side to side and a bit up and...
The last week has been hellish and I'm finding it hard to find the strength the deal with Dad's illness.
He's in the VA hospital hospice. He has pneumonia and a blood infection. The morphine and Ativan can't make him comfortable. At times, he's on a morphine drip and he's still thrashing and...
Since ALS doesn't actually kill you but respiratory failure does, if someone is on a trache and vent then couldn't they live indefinitely? for 20-30 years or even longer? I'm confused as to why or how ALS could kill you if you were on a trache and vent. Would this only be from possible...
Hi everyone,
So my dad has been in hospital for 2 months now. He went in with a GI bleed, then he got pneumonia so he was endotracheally tubed, then we opted to go for a tracheotomy and ventilator as my father still has much use of his legs and head although he has little use of his arms, upper...
My mom hasn't had her swallow test yet but her speech and swallowing have been degrading very quickly. The problem i have is even though my mom is going to move in with me in a month and half, right now she lives two hours away... is alone and very very depressed and angry about all this. She...
Hello everyone
I posted this in the "Is this ALS?" forum.. and this morning when i woke I realized that was not the best place for it.
First of all, hello! My name is mel and I just took my mom for her EMG test on wednesday.
Though the blood work and MRI came back ok.. and the EMG said her...
als
als?
arm
back
brain
brother
diagnosis
emg
feeding
feeding tube
genetic
genetic testing
hours
is this als
is this als?
life
love
mnd
mri
pneumonia
research
test
testing
work
My husband was diagnosed with Bulbar type ALS in December 2008. He opted to get a PEG tube and suprepubic cath...no vent. Since Labor Day we have been hospitalized 5 times with pneumonia. Three weeks ago, he became unresponsive and our hospice team told me that he had entered the last phase...