pneumonia

  1. L

    My Dad Died April 9th

    It has been such a busy time and I hadn't had a chance to post earlier. He was diagnosed 3/23/2017 and progressed rapidly. By May 2017 he was on AVAPS, July 25th he got a feeding tube and by December he had pneumonia and after being intubated for a couple of weeks went home on the Trilogy. He...
  2. B

    Visiting my sister in last stages

    Hi. I am new here. My sister was diagnosed in 2011. She has been in a nursing home for the last three years. We live 6,000 miles apart. The last time I was able to visit was four years (and one college kid expenses) ago. The nursing home is very good and paid for by her disability pension...
  3. G

    How important is Lateral Rotation (bed)?

    I have been fighting with my Denver VA for over two years now trying to get a lateral rotation bed. They initially, repeatedly refused the ProBed by Freedom Bed, saying that it is 'dangerous'. This is apparently because there's no clinical tests. So, another Vet got a HillRom Progressa bed...
  4. S

    Gods plan is better than my own

    First of all I am 41 with 2 amazing kids and been married to the love of my life for almost 25 years! My life is wonderful even though the past year has been tough. My symptoms started with shortness of breath or at least that is what slowed me down to notice. I was hospitalized 2 times for...
  5. Nuts

    Venting tomorrow---which will surely cause more venting

    I think I'm officially graduating from "we're making the most of it while we can" to "Yep, this really, really sucks". It's been a tough few months, with five ER visits and two hospital stays, three cases of pneumonia and one of the flue. No Matt, when you stop choking on every bite or sip it...
  6. Nuts

    Silent Aspiration

    We are four years in---why had I not heard of silent aspiration before today? Between November and January, hubby went through three rounds of pneumonia and one case of flue. It's been tough, but he's doing better. He was explaining to the Speech Therapist that he went through weeks of...
  7. O

    I still don't really believe this diagnosis...

    (Still trying to learn how to move around this site, so I hope my comments are in the correct forum.) I want to say Hello and how much I appreciate the depth of knowledge and the forthrightness that I read posted here. My diagnosis was last October, 2017, after spending about 18 months chasing...
  8. J

    Hello, I want to introduce myself

    I'm Janet, my 30 yr old son was diagnosed with ALS in December 2015 and he has had a progressive decline since. He uses a trilogy 24/7, is currently on tube feed and he can still talk. Over Christmas holiday he was in the hospital for pneumonia, He is back home now but he is having really...
  9. J

    Dad suffering from MND/ALS. Recently got bacterial pneumonia

    Hello, I have came with a lot of hope please give me the exact guide to help my father. My Dad's been suffering from this disease from 06/2016 . From day before two days he is being admitted in ICU as he was having trouble in breathing and also was having problem in swallowing food. He had lost...
  10. A

    Do i require a geneticists consultation?

    My mother and two maternal aunts all the three died of mnd almost at same age of 61 years. Nobody else was earlier diagnosed of the disease. None is afflicted at present as well. Since it has hapened to female members only and i am a mother to two daughters. I am distraught . I feel i have no...
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