1. B

    Advice needed from community. Medical mystery

    Hi all, Above is a link to my story till about May/June 2018. I have no idea what’s wrong with me, so I’m posting here looking for direction. I have seen multiple neurologists about my...
  2. B

    "Interesting case", "atypical presentation", no official diagnosis.

    "Interesting case", "atypical presentation", no official diagnosis. Good afternoon, and greetings. 32 year old fit female labeled as diagnostic mystery. 10 months ago--twitching all over body. Intense for 2 months, then left side predominated. Severe occipital headache, neck pain, pain in...
  3. J

    Neurologic condition still unclear

    Hi all, I sincerely hope I don't insult you by posting here. I have a pretty horrible neurological illness and facing difficulty getting clear diagnosis. I'm not convinced it's als but have thought of PMA. I have numerous rheumatic autoimmune conditions including sjogrens which has caused severe...
  4. David

    Leapcure Muscle Cramp Trial

    Do you have frequent muscle cramps? Have you been diagnosed with a motor neuron disease like Amyotrophic Lateral Sclerosis (ALS), Primary Lateral Sclerosis (PLS), or Progressive Muscular Atrophy (PMA)? If you’ve been diagnosed with motor neuron disease and meet the requirements listed below, you...
  5. Y

    Slight atrophy and weakness on one side of the body

    Dear all, please excuse me if I’m bothering you, I need an advice! So in january, it will be 3 and a half years since i started twitching.I twitch all over, even the places I don’t have atrophy. Since than I teitch 24/7. From the very beggining i noticed that some minor atrophy is developing and...
  6. KarenNWendyn

    ALS diagnosis update

    Back in July/ August, I posted that my neuromuscular disease specialist felt I had a definite motor neuron disease, possibly ALS. However he didn’t want to officially confirm ALS at that time because I didn’t have much in the way of upper motor neuron findings and he also wanted to document...
  7. G

    Dirty EMG/FALS after 2 years of BFS?

    Hi, I understand that you're not doctors, and I sincerely appreciate the effort with which you try to answer the posts here while dealing with this terrible disease (as someone who has lost a father to ALS, I'm unfortunately quite familiar with it). I'm posting here because I'm currently in a...
  8. Y

    3 years update!

    Hello dear all! I just want to make an update. It has been a bit more than 3 years since my symptoms started. From the begining i have body widespread twitching, i have weird sensations on moj tongue, it started to apear assymetryc few months ater twitching happend. All my problems from day one...
  9. Serval

    Newly Diagnosed with PMA

    Not sure that anyone looks at this site based on the date of the last posting. But, I wanted to say hello
  10. A


    Hi All, I just found this forum and I'm glad I did! I was diagnosed with PMA/MND on June 1st this year after many years of inconclusive tests. It wasn't until I lost muscle in my right hand that my neurologist looked deeper to find the cause. My right hand is affected badly and it is now...