pls

  1. BlsdMama

    Glycine receptor antibody? Swallowing fluctuations?

    Anyone else been tested or positive? Curious. I'm positive and Mayo thought certainly a more rare variant of Stiff Person. However, thus far, have not responded to meds. My MND doc at our university thinks PLS. Mayo admitted this week that maybe MND is what it is afterall. But first we try...
  2. M

    Veterans with PLS VA disability

    There are some closed threads on this subject but I am new and need some help. I was recently diagnosed with PLS and am a veteran. I have submitted two letters form neurologists stating that PLS is a variant of ALS. I tried twice to get the VA to grant me disability but they keep denying it...
  3. P

    Newbie

    Hello Everyone! This is my first post so bare with me. I'll spare everyone the details that took me from Aug. 2016 to now but as of now my Neurologist believes I may have PLS. I have had one MRI, 2 EMG's, several blood test and my next visit with her is Sept. 25th. I am seeing another...
  4. D

    Pls/stem cell

    I have PLS. Today is my first day on. I am looking for anyone who has had stem cell therapy and what the results were. I have been doing research on this for about six months and still can't find someone besides a knee injury that has had it done.
  5. K

    Still Looking for Canadians interested in Sharing their Experiences

    Hi there! My dad was diagnosed with ALS in 2016. His struggles with the Canadian Healthcare system have motivated me to do something to create change. So that he and others might be better cared for and supported. If you are a Canadian that has been diagnosed with ALS or a related condition...
  6. R

    Life insurance

    I'm trying to get some term life insurance, but I keep getting turned down because I have PLS. I was diagnosed back in 2007, and my progression has been slow. I'm in excellent health aside from being in a wheelchair. I had insurance with my previous job, but lost that when they closed up shop...
  7. O

    Is there a current study evaluating why some people with PLS don't progress to ALS?

    I'm starting a new thread to try to work out a bug in the system. I thought I've seen something recently about a study of PLS patients to attempt to learn why they have PLS rather than ALS. If there's not such a study, there should be.
  8. S

    People on here say I’m a fraud .. I have PLS

    People on here say I’m a fraud I can’t talk, walk and have no fine motor skills Local Governments Federal Government Catholic charities Say I am the wrong color and I made too much when I was not sick to get help. And now I can’t work ….
  9. T

    Hi, Pals... and friends. quick question.

    Scheduled for neck surgery Feb 27th. I think I can fully rule out PLS or any MND if you can confirm the following. Consistently each time for the past few days, if I do 30 to 40 push ups 3x a day, my leg stiffness and weakness improves noticeably right after and it stays better for a long...
  10. 2

    New and need guidance

    My dad was diagnosed with PLS a couple of years ago. For reasons I don't need to go into, his current living situation is going to change very soon, and my sister and I intend to have him live in our homes on a shared basis. I live 5 hours away from my dad and my sister's family, so...
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