pls

  1. BlsdMama

    And I'm back...

    Not without a fuss, mind you. Mayo found an antibody (glycine receptor antibody) and wanted to try several treatments for limb variant stiff person syndrome. Alas, nope. I felt the fourth trial improved my balance (quite a lot actually) but they can see no improvement, plus, everything has...
  2. K

    Just want your support...

    You’re all going to think I’m crazy..I know. I promise I’m not chasing this disease. I just want support through my journey. I just want to ask if I could hang around here with all of you, I love all of you. Your stories inspire me and talking to you all makes me feel so much less pain. It helps...
  3. A

    Bulbar onset PLS: how long before speech is gone?

    My husband was diagnosed in June with PLS. He had mild speech difficulties (slurring when tired) starting a year prior that have progressed since. He is increasingly nasal and slurred; he must speak each word slowly to be understood. He now has some toe drag with each foot and needs a cane for...
  4. C

    Similar as MS?????

    Hi Everyone, I am new here. I have been dealing with neurological problems for 10 yrs had every test done possible and I also saw 10 different drs. I got a Diagnosis in April this yr of PLS. I am wondering does anyone else have relaspes then snap out it?? I am consistent with MS so I would...
  5. B

    "Interesting case", "atypical presentation", no official diagnosis.

    "Interesting case", "atypical presentation", no official diagnosis. Good afternoon, and greetings. 32 year old fit female labeled as diagnostic mystery. 10 months ago--twitching all over body. Intense for 2 months, then left side predominated. Severe occipital headache, neck pain, pain in...
  6. E

    Second EMG

    My father has been suffering from upper motor neuron signs over the past three years, with no apparent lower involvement (clean EMG and still no fasciculations), which led doctors to think of PLS. In a second EMG, the results are indicative of "mononeuritis multiplex or motor radiculopathy", but...
  7. 6

    Not Accepting PLS Diagnosis

    Recently diagnosed w/ PLS & approved by VA 100% disabled, my husband is having difficultly accepting both. He knows he has health problems like difficulty speaking & very low on energy but he doesn't think he has PLS. We already received a 2nd opinion from the Mayo Clinic who agreed w/ the 1st...
  8. B

    Newly diagnosed

    Hello everyone, After having received a diagnosis of PLS 7 months ago, my doctor changed the diagnosis to ALS 2 weeks ago based on lower motor neuron symptoms. I've been on riluzole for 3 months, and just signed the paperwork to start radicava. My mind is definitely spinning at the moment, so I...
  9. Q

    Do I have ALS (Amyotrophic Lateral Sclerosis ) my symptoms and blood tests, help pls

    Age: Turning 22 Height: 5'11" Weight: 147lb, lost 23lb in last 3 months but not entirely sure why, could be just eating less or something less, not sure Gender: Male Medications: No Smoking/Drinking: No Pervious illness: None really, I never got sick other than the "common cold" Duration...
  10. A

    Pls?

    Is it the longer one is improving in affected limbs the less likely pls/als? Can plateaus last years?* I had a thread for my dad but it's closed now.* He doesn't want to go for more testing since nmd doesn't have treatment. He got the possible pls and that was enough. I'm the one digging...
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