pls

  1. E

    Speech Therapy for PLS

    I posted this on the general forum, but thought it was more appropiate for this site... Hello, My father was diagnosed with PLS a few months ago and has been experienced symptoms for more than 2 years. I wanted to ask you all about experiences with speech therapy. My father's speech is...
  2. E

    Speech Therapy for PLS

    Hello, My father was diagnosed with PLS a few months ago and has been experienced symptoms for more than 2 years. I wanted to ask you all about experiences with speech therapy. My father's speech is unaffected yet and his lung function and breathing are perfect as by the latest tests, done...
  3. E

    New Sympton: Trembling when Yawning

    Hello, My father was diagnosed with PLS a few months ago, after 2 years of symptoms. He still has no lower motor neuron involvement, since he has no fasciculations, muscle wasting, or weakness. However, he recently has been experienced a new symptom: when he yawns, his right arm trembles very...
  4. M

    PLS and Weight Training

    Does weight training help with PLS? It seems to keep me strong and I have had very little weakness with my PLS. The only negative is that it makes my stiff legs even more stiff. This is because I have the stiffness from the exercise on top of the PLS stiffness. I hope to hear form TxRR...
  5. BlsdMama

    And I'm back...

    Not without a fuss, mind you. Mayo found an antibody (glycine receptor antibody) and wanted to try several treatments for limb variant stiff person syndrome. Alas, nope. I felt the fourth trial improved my balance (quite a lot actually) but they can see no improvement, plus, everything has...
  6. K

    Just want your support...

    You’re all going to think I’m crazy..I know. I promise I’m not chasing this disease. I just want support through my journey. I just want to ask if I could hang around here with all of you, I love all of you. Your stories inspire me and talking to you all makes me feel so much less pain. It helps...
  7. A

    Bulbar onset PLS: how long before speech is gone?

    My husband was diagnosed in June with PLS. He had mild speech difficulties (slurring when tired) starting a year prior that have progressed since. He is increasingly nasal and slurred; he must speak each word slowly to be understood. He now has some toe drag with each foot and needs a cane for...
  8. C

    Similar as MS?????

    Hi Everyone, I am new here. I have been dealing with neurological problems for 10 yrs had every test done possible and I also saw 10 different drs. I got a Diagnosis in April this yr of PLS. I am wondering does anyone else have relaspes then snap out it?? I am consistent with MS so I would...
  9. B

    "Interesting case", "atypical presentation", no official diagnosis.

    "Interesting case", "atypical presentation", no official diagnosis. Good afternoon, and greetings. 32 year old fit female labeled as diagnostic mystery. 10 months ago--twitching all over body. Intense for 2 months, then left side predominated. Severe occipital headache, neck pain, pain in...
  10. E

    Second EMG

    My father has been suffering from upper motor neuron signs over the past three years, with no apparent lower involvement (clean EMG and still no fasciculations), which led doctors to think of PLS. In a second EMG, the results are indicative of "mononeuritis multiplex or motor radiculopathy", but...
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