pls

  1. S

    26 year old female scared of ALS/BULBER

    hello my name is Silvia and I'm new here... I also joined BFS group I'm just so confused on my symptoms and why I am having it! If anyone is nice enough to please answer I would greatly appreciate it... So I noticed around June this year I got a twitch in my hand the the following week (s) I...
  2. S

    Hand atrophy

    Hi all, I usually post in the PLS section since I've been diagnosed with a pure upper motor neuron disorder, but I wanted to post this here. The disorder I've been diagnosed with, hereditary spastic paraplegia, typically affects mostly the legs and generally does not cause atrophy, a lower...
  3. T

    Other thread closed

    Hello again all. 3 months ago i had my appointment with a neuro that specialises in e.m.g in a hospital of brisbane city. The moment he did a brief examination of me and asked my history he immediatley told me he doesn't thinks its als. He still went ahead with more blood tests and...
  4. N

    PLS and Joint Replacement Surgery

    I am new to writing on this site but I have gained much knowledge following the site. I have PLS and now need a right hip replacement. Has anyone had experience having a joint replacement surgery with PLS? Did any complications occur after surgery because of the PLS? Was there an...
  5. Green Queen

    Sydney Trip...take two

    It's been six months (5 1/2 really ) since we were in Sydney. We were told then either PLS or it's variant Mills Syndrome. We were told then to come back in 6 months. Well, here we are! We are staying at this...hotel...which to say it's quirky is a bit of an understatement. Carrah would...
  6. A

    M's writing

    M has been writing over the last 5 years. He recently had a piece accepted in Intima, a journal of narrative medicine. I thought people would enjoy his perspective on his PLS. He is not a forum person, so it may be the only time you here from him as opposed to about him. Anna Night Trip ? Intima
  7. G

    Is it als, in limbo

    Hello, I am a 40 yo male with symptoms that have stumped several doctor's. My most troubling began in October of 2014. Right foot drop, babinski sign is positive right side, Pronator drift, weakness now to the point va docs now saying subjective weakness, atrophy beginning to be...
  8. C

    Why ALS and not PLS?

    My MIL has recently been diagnosed with ALS, symptoms include slurring and difficulty speaking, tongue numbness and fasciculations and twitches in upper arms and one or two fingers, symptoms began in February of this year and have gotten progressively worse. I just wondered if anyone had any...
  9. B

    Just diagnosed with PLS

    Hi I am a newbie.....any advise you can give me? Anything I can about my voice. I have no voice! I am going to a speech therapist! I have an app on my phone. But mostly I carry a pad and pen! Bobbie2
  10. K

    New here- waiting for diagnosis

    Thank you. He is going to Johns Hopkins to see a specialist for his tremors ( he has always had them, they have just gotten worse as his walking problems arose). Thanks for the advice.
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