pls diagnosis

  1. V

    Do you have PLS?

    PLEASE!PLEASEanswer me! Do you have PLS? This is such a rare disorder, it is hard for me to find any information on this!:-(
  2. V

    PLS diagnosis . . . wrong?

    I have been dealing with symptoms since 1999/2000. For awhile I couldn't seem to convince a doctor that there was something wrong (leg weakness, irregular gait). But, because none of the signs were obvious none of the doctors took me seriously. Finally, after 2 brain MRI's, 1 spinal MRI, an...
    • ValRunk
    • Thread
    • brain diagnosed diagnosis emg mad mri neurologist neurology pls pls diagnosis professor progression symptoms tests weakness wrong
    • Replies: 8
    • Forum: Primary lateral sclerosis
  3. J

    Demyelination w/ PLS?

    Doctor's office called and they found demyelination and some other junk but I asked about lesions and they said there were none, just demyelination so I asked about the PLS diagnosis and she said that there can be demyelination in PLS? Say what? Anyone heard of this? ARGH...I am frustrated...
  4. J

    Back to stay

    Almost one year to the day from when the symptoms first began: For all you who remember me: Good news: not MS or MSA.... Bad news: PLS I'm here to stay, not sure how much I'll actually be here because I don't feel so great. My heart stuff is back, too, as I shared I think in another post but...
  5. paul318

    Is a Babinski's sign always present in PLS?

    I was reading that Babinski's sign is one element of a PLS diagnosis. Is it always present in PLS? I don't think they found this sign in me when it was last done. Would that rule out a possibility of PLS? Paul
  6. T

    My PLS story (long)

    My name is Rob and I am 35 yrs old, married and father of three teenage daughters. I was diagnosed with PLS in early 2007 by Dr. Appel. My story begins in 2003. I had back surgery to correct a herniated disc. I had no signs or symptoms of PLS at this point (atleast that I was aware of). My back...
    • TxRR
    • Thread
    • age back chair diagnosed diagnosis dying early father fell financial foot hours housing life lifts mri neurologist pain pls pls diagnosis problem scared second opinion story surgery symptoms tests vent work wrong young
    • Replies: 13
    • Forum: Primary lateral sclerosis
  7. G

    Second opinion on PLS Diagnosis

    Finally had second opinion at UPMC Pittsburgh with a top notch neuro. First diagnosis was PLS in September 2007 from neuro near our home. We were told if all testing (which was very extensive) proved negative here then he would like us to go to Pittsburgh for second opinion at UPMC. The neuro in...
    • Gracie
    • Thread
    • brain diagnosis life medical mri pls pls diagnosis research second opinion testing tests women
    • Replies: 6
    • Forum: Primary lateral sclerosis
  8. R

    How common is upper motor neuron onset?

    Hi everyone, I'm thinking that I'm at the end of the line in terms of ruling things out that might mimic ALS & am probably lucky if I end up with a PLS diagnosis, but I suspect it may end up being ALS. My question is, has anyone here with ALS had an onset similar to mine, with upper motor...
    • robc
    • Thread
    • als arm atrophy back biopsy brain bulbar clinic denervation diagnosis emg exercise genetic genetic testing hiv hours hsp manual motor neuron disease motor neuron symptoms muscles onset pls pls diagnosis power power chair problems reading symptoms testing twitches wheelchair worry
    • Replies: 8
    • Forum: Could this be ALS?
  9. B

    PLS Diagnosis

    My mom has PLS and I am looking for someone to talk to about it. If anyone has it or has a family member with it I would really like to hear from you. Thanks Brandy
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