pls diagnosis

  1. konagirl

    Questions

    Hi there, I hope my questions are not too silly, I am just trying to wrap my brain around some things. To be fair, and honest, we do not have a diagnosis yet so maybe I should not even be posting here, please tell me if I need to leave. Our neuro has told us he is confident my husband is facing...
    • konagirl
    • Thread
    • ability als back brain clean emg clinical confused confusing diagnosis early emg emg? foot foot drop hope motor neuron disease muscle paralysis pls pls diagnosis questions stages symptoms test umn weakness wheelchair
    • Replies: 7
    • Forum: Primary lateral sclerosis
  2. B

    New PLS diagnosis and lots of question

    Hi folks, so happy to have found this sight after searching for info about my diagnosis of PLS in July. First off, if this is in the wrong forum please let me know. So, before I ask any questions let me give you all some history. I'm 46, male and in all other aspects very healthy. About 2 1/2...
    • Bulldog29
    • Thread
    • back brain bulbar confused cramps diagnosis diet driving emg hope info mnd mri muscle neurologist night pain pls pls diagnosis progression reflex second opinion stress tests wanted worry wrong
    • Replies: 29
    • Forum: Primary lateral sclerosis
  3. Green Queen

    PLS Diagnosis

    Hello all. My name is Janelle and I have recently been diagnosed with PLS. I am techno challenged, I've never joined a group like this before so please accept my apologies now for future stuff ups😃😃 I have limited use of my right side and have done for about three years but was only diagnosed...
  4. F

    PLS Diagnosis

    Good afternoon, all! Well, I’m now over a year in the diagnostic process and just yesterday (following gallons of blood work, MRI’s, EMG’s and NCV) I have received a “working” diagnosis of PLS from the head of an ALSA clinic He was very clear that this is a “working” diagnosis only to the...
    • FrJn
    • Thread
    • alsa clinic clinical diagnosis dihals free healing health love pennsylvania pls pls diagnosis reading support veteran work
    • Replies: 14
    • Forum: Newly diagnosed
  5. T

    Another breathing question

    Hi Everyone, I read through the difficulty breathing post from July, but have a couple of additional breathing related questions. I was given a provisional PLS diagnosis in July after presenting with bulbar symptoms with no LMN findings on two EMGs. (dysphagia, dysarthria, clinical neck...
    • taliaric
    • Thread
    • breathing breathing issues bulbar clinical diagnosis dysphagia go away headaches neurology pls pls diagnosis questions sleep speech support symptoms weakness
    • Replies: 8
    • Forum: Primary lateral sclerosis
  6. L

    3 years since PLS diagnosis

    Here’s where I am at 3 years with my PLS: • 2009 o Started in left leg, then right (foot drag, falls) • 2011 – June – Diagnosed • 2012 o Started using a cane o Hands next –weakness and fist clenching at night – wear braces for this o Emotional lability (laughing and crying episodes) o...
    • LouLou
    • Thread
    • age als catheter crying cure diagnosis foot increase night nih nurses pls pls diagnosis problems progression swallowing swallowing issues test tongue voice walker
    • Replies: 4
    • Forum: Primary lateral sclerosis
  7. E

    Angry and Scared

    I don't know if it's normal to feel so angry and scared about my PLS diagnosis, but I am. Before my diagnosis I had "undefined symptoms", but since my PLS diagnosis in March I feel like my world, at 47, has come to a screeching halt. Gone are my career, some of my hobbies and many of my future...
    • Eric2266
    • Thread
    • angry cry cure death diagnosed diagnosis life pls pls diagnosis rant scared stages support symptoms treatments unsure
    • Replies: 21
    • Forum: Primary lateral sclerosis
  8. S

    And then comes the waiting

    Hi all, I posted on the DIHALS board about a month ago about a possible UMN disorder. Since that time, I've received confirmation that I do have some type of UMN dysfunction, likely either HSP or PLS. The other big suspects have been ruled out at this point. My main problem is spasticity in...
    • Suzannah
    • Thread
    • back baclofen bed denial diagnosed diagnosis dihals genetic hours hsp insurance pls pls diagnosis problem questions test umn wrong
    • Replies: 7
    • Forum: Primary lateral sclerosis
  9. W

    What is your neuro's specialty?

    Basically, what kind of neurologist do you see? Currently the neuro I"m seeing is a migraine specialist, in the general neurology clinic. Which is ok for my cluster headaches, he's the one that was able to diagnose them and is working around with my meds to try to get them under control...
    • wendya432
    • Thread
    • als clinic diagnose diagnosis headaches meds neurologist neurology pls pls diagnosis problems umn
    • Replies: 13
    • Forum: Primary lateral sclerosis
  10. D

    Could this be PLS?

    Dear All, I hope I don't bother you with my long story, but I am looking for help! Hopefully I posted this in the right category! I'm a woman from 21 years old and I live in The Netherlands. I am desperate and I need some help. What's my story? The problem started when I was about 15 years...
    • Dutchie
    • Thread
    • back ball eyes fell foot drop help! hope lift movement muscles neurologist pls pls diagnosis problem research shaking stiffness story symptoms tests therapy twitching voice wanted wheelchair
    • Replies: 27
    • Forum: Primary lateral sclerosis
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