pls diagnosis

  1. opusensemble

    Dr. says it's likely to be PLS. Will MRI and EMG help?

    Hi everyone, This is my second time posting. First time I had not been checked by a neuromuscular illness doctor yet. Meanwhile I got checked and this doctor identified the following symptoms with 1 year progression since onset: ✓ Generalized Hyperreflexia ✓ Generalized stiffness in 4 limbs ✓...
  2. 6

    Not Accepting PLS Diagnosis

    Recently diagnosed w/ PLS & approved by VA 100% disabled, my husband is having difficultly accepting both. He knows he has health problems like difficulty speaking & very low on energy but he doesn't think he has PLS. We already received a 2nd opinion from the Mayo Clinic who agreed w/ the 1st...
  3. L

    Confused

    Hiya guys, New to this forum thought i would introduce myself. I have enjoyed reading all your helpful posts. I was having a nosey round but couldnt find an answer to my query specifically so while saying hello i thought i would ask here. So the very short version of a very long story.... i...
  4. BlsdMama

    Glycine Receptor Antibody?

    Has anyone else been tested for this? I was dx'd by the U of Iowa Neurology around April/May-ish officially with PLS, moved to ALS Clinic. Asked for a second opinion in June. Was seen by Mayo in Rochester in July. The PLS diagnosis was affirmed. I was tested for Stiff Person Syndrome (GAD...
  5. S

    Veteran disability benefits for those with PLS diagnosis.

    For those veterans diagnosed with PLS (vs ALS) below is link to a recent appeal where a Veteran, who had previously been turned down for benefits based on a diagnosis of PLS (vs ALS), was awarded disability benefits for a PLS diagnosis. In the past, Vets have been turned down for the ALS...
  6. C

    PLS becomes ALS?

    Hey! I was diagnosed initially with ALS in 2013--after testing and 2nd and 3rd opinions, I was more correctly diagnosed with PLS. Last year after a follow up EMG, I was told that 75% of people "progress" to an ALS diagnosis within 2 years. I was very fortunate to stay in the PLS category after...
  7. M

    Questioning New PLS diagnosis

    2 years ago my father, now 73, was a perfectly healthy man with absolutely no symptoms of any disease. At 71 he was riding in a freight elevator which failed. He fell approx 15 ft and suffered compound fractures in both ankles. For obvious reasons, all attention was given to salvaging his...
  8. Green Queen

    Don't read if you aren't "religious"

    Hello lovely people This is my Final Post. I'm moving on. Wayne and I are off to Perth shortly to see a neurologist who specifically deals in stroke. I am extremely fortunate to have an appointment with him. I have been convinced for a while now that my PLS diagnosis is wrong, I really don't...
  9. P

    Diagnosed with PLS

    In November of last year my neurologist has given me the tentative diagnosis of PLS. My symptoms began in June of 2015 my not being able to pronounce words very well. My speaking was fine, every now and then a word would come out funny sounding. It only happened every now and then and...
  10. ShiftKicker

    How many PLS'ers are on the forum?

    Just checking in to see how many of the active forum members have been diagnosed with PLS or are on the pathway to a PLS diagnosis. It has the reputation of being rare, but in my internet travels, there seem to be more out there than I would have guessed. There seem to be only a few active on...
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