please help

  1. W

    Scared of als

    Hi my name is will , i am writing because I have worries about my health and it is affecting my life as well as my wifes. I am 24 yr male and ive hand symptoms of weakness in my left leg and i feel tightness in my right. I have twitching all over mainly in legs and both arms i have tightness in...
  2. J

    88 year old Mom recently diagnosed...please help!

    My Mom will be 89 in November. She was always very busy, doing her own cooking, cleaning, etc. She got out with friends a couple of times each week. She was just diagnosed in July with Bulbar ALS and is having trouble speaking clearly. Is there anyone out there who was diagnosed at this later...
  3. I

    How to change Bipap settings as for the disease progress?

    Dear PALS, hope you the bests. I started Bipap 1 year ago for my patient with below settings: mode: ST IPAP: 12.0 EPAP: 5.0 IBR: on Target pt Rate: 14 Trigger: high (i dont know what is this) Cycle: Med (i dont know what is this) Ti max: 2.0 sec (i dont know what is this) Ti min: 0.3 sec...
  4. S

    Still terrified.

    I'm sorry if I'm not able to make a new thread, but my other one was closed so I didn't know what else to do. I posted a thread called "Terrified. Please Help." and got some good feedback from it. However, I still have this ALS fear. I was worried about foot atrophy due to one foot being...
  5. L

    Mom of 11 month old please help

    Good evening beautiful people, Please kindly take the time to read this and help me as I’m a mom to an 11 month old and I’m really scared. Any help/ answers id appreciate so much. Last Monday I woke up in pain in my legs it felt like I had ran a marathon days before but I didn’t work out at...
  6. S

    Terrified. Please help.

    Hey all, I'm hoping you all can help me. About a month and a half ago I was laying down for bed and my face went numb. It stayed numb off and on for 3 days. I went to the doctor and he said he thought it was anxiety due to me going thru a stressul time at the time. He done an MRI and...
  7. C

    MND or MMN? In limbo! Please help

    My family and I have been feeling so desperate and confused the past two weeks. My Dad went to doctor initially with weakness in right hand and some muscle wasting in arm (which we thought was from him favouring his left arm for the past year). Doctor sent him to neurologist and during the...
  8. H

    please help

    first of all thank you all for allowing us to ask you questions about a serious disease that has affected you. very appreciated my questions, and i am very concerned: a very close person, whose mother has been diagnosed with frontotemporal dementia (at age 71,) is suffering from acute onset of...
  9. A

    Hypoflexia? Is this what I am expiriencing?

    Hello everyone, I just want to start off by saying that I know only a doctor can diagnose me with anything. I have also read the stickies and have a few questions about hypoflexia. I realize no one can diagnosis me with anything but a doctor. Like, what is it exactly and how is it diagnosed? And...
  10. A

    First time here, please help me understand these symptoms

    Hello everyone, I am a 19 years old High school student and last year was a total nightmare for me and now it continues. I do not know what is happening with me but it scares the hell out of me. So I hope you can help me to understand these symptoms and help me maybe because i am desperate, docs...
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