planning

  1. NothingButLove

    The level of cruelty is off the charts

    My wife's neurologist first suggested ALS in early October. I've been a basket case for the past couple of months. I don't know if your brain just runs out of "sadness juice" or it develops calluses but very recently I could feel the "fog" starting to lift. I guess you just can't hurt that bad...
  2. F

    Happy New Year, All!!

    Nope, I didn't stay up to see lighted balls, marshmallow chicks, pickles or sundry other things descend at midnight... By then I was engaged in checking my eyelids for light leaks ... :lol: However, now that I have everything in place for our first Eucharist of 2017, I did want to pop in...
  3. S

    Medical Equipment

    We have United Healthcare Insurance. January 2nd, I am planning to order whatever medical equipment my PALS needs. What will insurance not cover? I am looking at power wheelchair, eye gaze communication, cough assist, shower chairs, grab bars and whatever else he may need. We are also...
  4. Lkaibel

    I Can't Reconcile Myself to This...

    Yet, what choice do I actually have. Brian was diagnosed 6 months ago. He has a weaker left hand and has progressed to using a cane, mostly to to strength and balance issues with his left leg. Lately, I just can't stand it. I wound up crying in my bosses office just mentioning that my husband...
  5. C

    Bulbar & tracheostomy (Endotracheostomy)...

    I'm planning an operation or insertion in January. I understand the basic dynamics of both. However, is there anybody on the forum that has experience with a heavy mucus flow during the use of said device(s). My concern is that the 'baloon' is far enough down the trachea that mucus can...
  6. MrCrumbs

    Wife recently diagnosed with familial ALS

    Well, I don't exactly know where to begin... So, for the sake of filling up this white box i'm typing in, I sum up where we are at today. My wife, 32, and I, 33, had our first child just shy of a year ago. I work from home and she decided to be a stay at home mom. It all started back in May...
  7. scaredwifetx

    The greatest gift we can give our PALS

    Today was one of the good days and at the end of the day... I realized... the reason it was so grand. Steve was tickled, happy and talked to me like he used to before ALS came into our lives. Why did he choose today when there was nothing special going on? It was because I was my pre-ALS self...
  8. K

    Diagnosed Yesterday- house questions

    Greetings from Oregon- I was diagnosed yesterday with ALS. We are selling are 3 level townhome (stairs are evil), and just purchased a single level home which we will be making some renovations to. Looking for suggestions on house updates. We are already planning to rip out carpet to put in...
  9. S

    New Dx for spouse last week

    I'm in shock from the diagnosis of ALS my 39 year old spouse recv'd last week. We have kids in high school and middle school. Right now I am scrambling to find the right questions to ask for our future planning. Any advice on the questions to ask of employee benefits (there is short term and...
  10. tripete

    How Did the Progression Occur

    I am curious on how different PALS progression occurred? My breathing muscles have been the first to go. At first I noticed difficulty breathing at times when I should not have had problems. For example I was an avid runner and I began to notice that at relatively short distances I was loosing...
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