planning

  1. N

    Medical Cannabis for Symptom relief

    New to the forum, I was diagnosed 11/21/16, and have been using THC and CBD to combat the daily symptoms. I have been taking high concentrations of both daily, and am seeing the progression slow a bit. I vaporize and smoke since I still can. I'm assuming my fellow PALS want to know what...
  2. L

    Bipap

    Just got a Bipap machine, when I go to try to sleep breathing get difficult. Daytime breathing is good, have 68%. Question is I read that I am suppose to start using the Bipap machine when my breathing gets under 50%. It was setup according to my breathing height and weight. Been trying for...
  3. M

    Grateful for any help-Bulbar?

    Thank you for any advice. My mom was just diagnosed w Bulbar onset. I am planning to be her caregiver, and also have 3 children. I am 46. In taking her to spots i noticed that some of the symptoms she has I actually have too, and have been ignoring. What ate the chances right? Specifically, I...
  4. Firefighter58

    What should be done

    Good morning friends, this weekend my wife is not home and my son is here for the weekend to administer my meds to me with my tube and syringe, and to cook the meals, that works out good because he is a diesel mechanic but always wanted to be a chef so he is a hell of a cook. My wife and her...
  5. KimT

    Financial Situation and Future Planning

    I'm writing this for the benefit of all CALS and PALS. I've been a CPA for nearly 40 years. Part of this has involved personal financial planning and teaching personal financial planning at the college and university level. PLEASE make sure you have a financial plan and your spouse AND...
  6. S

    Husband diagnosed Feb. 2017

    Hi, My husband was diagnosed with ALS in February 2017, but the signs and possible diagnosis have been there for some time. During last 2 weeks there has been a decline in his ability to stand and walk. Falls have been a problem for well over a year, but now standing and walking are difficult...
  7. Lkaibel

    Tired

    Okay, my PALS is still pretty darned mobile (he is driving himself to pool exercises 3X a week), He is doing pretty well emotionally at the moment after a bad patch last week. Still, I am exhausted, like sometimes I wonder if I need to worry about falling down, not just him. Work is hectic...
  8. Kristina1

    talking to my kids

    We have held off on saying anything to my kids after my initial provisional diagnosis. My diagnosis was confirmed today. We want to at least initiate a conversation with our older two, who are ages 6 and 8. We don't want to scare them but they have noticed some of the little changes and...
  9. D

    Shower question- how small is too small?

    We have a small bathroom that we are planning to renovate soon. It has a 36" corner shower right now but has a threshold that is getting a little precarious and I want to get a safer option as soon as possible. We don't have room for a full 60x32 roll in. I can knock down a wall to gain 2...
  10. M

    Need advice regarding my mother's situation

    I would like to share my mother’s story with you in the hopes that I can receive advice regarding my family’s situation. This might seem like a very ‘dry’ explanation of the situation, but I assure you that there are a lot of emotions involved My aim is to give the clearest and most objective...
Top