Friday we went to the ALS clinic and recieved a definitive diagnosis. ALS. We had anticipated this but still held out hope it might be something else. I feel like I have been hit straight on by a brick wall.
The clinic has a good support program and we are going to get started as soon as...
Saw the local pulmonologist today. My breathing is still OK, FVC at 83%. But that's down from 90% a couple months ago. He was pretty cheerful and we talked about the longer term. He said he would support whatever we wanted, and we said we were planning on a trach when the time comes.
He said...
My mother has been diagnosed with ALS as of Friday, the 9th. She will be 63 this year, and all of her symptoms thus far match perfectly with the signs of ALS as far as I understand it.
Although she's been diagnosed by a specialist in our area, he is recommending her to a doctor at the Mayo...
Hello,
My husband was just diagnosed with possible/probable ALS by a specialist. He has denervation in his left arm and hand--so now we are just supposed to wait and monitor progression but the specialist thinks it is ALS and offers no other possibilities. We are planning to go to Mayo for a...
Hello, everyone. Well, here I am, having finally had the tests I've waited three months for. The emg was "I don't see anything that convinces me you have als - any abnormalities could be put down to your age". MRI was OK. The neurologist, who specializes in motor neuron disease, showed concern...
age
als
arm
arm weakness
back
clean emg
cramps
diagnosis
emg
fasciculations
foot
information
motor neuron disease
mri
neurologist
no diagnosis
planning
reading
symptoms
tests
weakness
Me and my wife got back yesterday from a wonderful vacation to Zion and the North Rim Grand Canyon National Parks and I have to say I was pleasantly surprised how accommodating they are to wheelchair access.
We flew into Las Vegas, which I was apprehensive about because it was my first air...
When did you decide to do it?
My mom will be alone after I leave on Monday to head overseas. I am so freaked out.
My dad is wheelchair bound, but pretty independent, still wants to use the toilet on his own, etc.
Mom nearly dropped him on the toilet the other day, and he was hanging onto her...
Good Morning All!
My mom was diagnosed with ALS Sept 2009. She currently uses a walker and a wheelchair to get around. She uses a bi-pap with oxygen at night.
She is talking about flying out to Albuquerque, NM some time in the future. I know she had to use oxygen while out there this past Feb...
This may silly but I need to know from others like us if having a benefit to raise money for mom who was diagnosed with onset ALS on Jan. 4, 2010, I believe the website refers to it as Progressive Bulbar Palsy ALS.
At that point she was just really weak but was still able to eat, talk and walk...
als
breathing
bulbar
caregiver
diagnosed
equipment
family
friend
health
hours
information
kids
lift
medical
medicare
money
onset
planning
swallowing
van
ventilator
wanted
website
wes
wheelchair
work
This may silly but I need to know from others like us if having a benefit to raise money for mom who was diagnosed with onset ALS on Jan. 4, 2010, I believe the website refers to it as Progressive Bulbar Palsy ALS.
At that point she was just really weak but was still able to eat, talk and walk...
als
breathing
bulbar
caregiver
diagnosed
equipment
family
friend
health
hours
information
kids
lift
medical
medicare
money
onset
planning
swallowing
van
ventilator
wanted
website
wes
wheelchair
work