planning

Is anyone else going to the ALS ONE conference? Link: https://alsonecareconference.org/?utm_source=ALS+ONE+Community+Care+Conf.&utm_campaign=Tickets+push+1&utm_medium=email My husband and I are planning to go.

In the Fall of 2015 my dad started noticing some weakness and stiffness in his arms. He became more easily fatigue that normal, began feeling like it was taking more and more effort to breath. Being an active person, he particularly concerned and decided to pay a visit to the family doc. On...

I have watched my craigslist nurse (let's call him Craig) prepare and infuse my Edaravone for about 20 times now. And I know others are planning to get "under the table" infusions done too. So I will describe the procedure for those who may need this information. First, Craig lays down sterile...

Hard to do sometimes but it is important to plan and very important to have the information somewhere people can find it Backup Plans: Sometimes family caregivers die before their p... : Neurology Now

Hello everyone My father has been diagnosed about 2 years ago and still going strong. Obviously i've been researching any option for him. I am certain many of you saw articles by Unique Access and GlobalStemCells which is the same team. We want to be vigilant and not taken advantage of...

Hi all, I'm hoping someone can point me in the right direction here. I turned in my resignation at work, however, they know my situation and have put me on FMLA/short term disability instead. It will last for 12 weeks and allows me to still receive some income and also keep my current...

As many of you know I banked my voice with Model Talker. I have the file that was produced installed on my ancient Samsung Galaxy S4 cell phone. I have been having difficulty using my thumbs to type of the phone's keyboard. As my voice continues to fade, I decided it was time to get serious...

My husband finally had his diagnosis of Bulbar Onset confirmed last week and we are naturally devastated. Whilst he wants to know nothing about what might come next and when, I feel i really want to know everything and need to know what to expect. I have read many posts on here and everyone is...

I am not really into golf much but this pga tournament was here in WV this wk- end and my grand daughter took me. for the day. It was a beautiful summer day and great for people watching! Real good to hangout with my grand daughter all day and many folks just came up to say hello. Now for some...

Sorry I hadn't logged in for some time. Original thread here: https://www.alsforums.com/forum/do-i-have-als-als/38134-my-story-after-6-months-twitching-cramps-maybe-some-foot-drop-suggestions.html Mods please combine it back if possible.:mrgreen: <Sorry. See my post below. --mod> My...