planning

I've never posted in this section of the forum before but after this week, I am wondering if it will be something I will now be frequenting. How do you know if your PALS is developing FTD? We won't be going to any more doctors with the condition he is in. We finally got his doc to make a home...

A number of years ago when I was still working, I was acting for a friend of a friend of mine (we will call him Bill) in connection with a home purchase. We had an appointment to meet at my office the evening before closing. Bill gave me a call advising that he was running late. I knew...

Lately I've been wiping my PALS behind on the toilet. Soon I know I'll be brushing her teeth and feeding her. I wonder how we're going to care for her when her arms and neck become totally limp. We want to stay at home-no hospital, no vent, no tubes. What shall I plan for? Background: My wife...

I hope nobody minds... below are somewhat random jumbled thoughts.... My wife was officially diagnosed with ALS about 3 weeks ago... though she's asking for a second opinion. We first learned about ALS about 2 years ago when she went into the dr about her leg. It was smaller than her left and...

Spent 3 hours with the neuro the crap insurance sent me to. They had told me the Emg/ncv was approved....it wasn't. I sat for an hour and a half after his exam--because he said it's imperative that an EMG/NCV be done this week--and he also says I need biopsies. He wanted EMG/NCVs approved...

hey guys hope everyone has a good easter sunday.....i just recently joined here after having some strange symptoms: it all started with a bad cramp in my right hamstring,legs began to feel stiff, and started to twitche or feel like bugs crawling on them,my caalf muscles look like they are...

So far my limited experience has shown that one of the most difficult questions to ask your ALS doctor is: "How much longer do I have?" I believe that this must also be a difficult question to answer sincerely without many evasions and generalizations; especially since with a trach and vent...

I'm Steve and I have ALS - seems like I ought to get a chip or something.:) I turned 60 and retired, planning to play a lot of golf, then on a tee box my right leg folded and I COULDN'T GET UP! A couple of months later I was diagnosed and now can't play at all. I can still walk (actually I...

IM is an assessment and treatment tool used in therapy to improve the neurological processes of motor planning, sequencing and processing. I started this therapy approximately 2 weeks ago however to my knowledge it has never been tried on an ALS patient before. My research has been unable to...

Recently, I got angry with neuro #1 and asked for my test results. I figured he didn't seem to want to treat me anymore; but was charging me hundreds of $'s for no help. I know these diseases are difficult to diagnose and it needs to be narrowed down; but sometimes you know when to move on...