My previous threads are old and have been locked so that is why I’m opening a new thread. A couple months ago I did get an emg and based on the results my neurologist came to the conclusion I have cramp fasiculation syndrome.
The reason why I was given that diagnosis was because to him I didn’t...
Hello beautiful souls,
Since symptoms began, my father has been steadily gaining weight, especially over the last few months as spasticity worsened. He tries to stay active by going to physical therapy three times a week and by pedaling at home in the electric bike, but he has gained at least...
Hello I am looking for some guidance and help for my husband right now. We are in the process of trying to get a diagnosis or at least pointed in the right direction.
About 5 weeks ago he began to feel some pain in his shins on both legs, the right side felt a little more tender to touch mid...
Hello all. Just wanted to thank anyone for taking the time to read to and/or respond to my post.
In June, 4 months ago, my shoulder started to hurt. I had to quit my job because of the pain. I was diagnosed with shoulder impingement, and got several cortisone shots, attended physical therapy...
This is sort of an update post (last post was in the Newly Diagnosed) but I wanted to move my thread to a maybe more appropriate category.
My husband has gotten a second opinion from the chief neurologist at the University of Münster in Germany, where he is from. He was also able to...
I was wondering if you could give me your opinion on my husband. For about a year he was having issues with his back. He tried physical therapy and epidurals. Nothing seemed to help. Fast forward to a couple of months ago...we both started noticing him limping. He noticed that his...
motor neuron disease
I had my first appointment with the physical therapist today. I was with him for an hour and a half and he did a thorough evaluation. He has worked with MS patients (one was there at the time I signed in) and he actually requested more information about ALS. He understood the disease but...
My father has been suffering from upper motor neuron signs over the past three years, with no apparent lower involvement (clean EMG and still no fasciculations), which led doctors to think of PLS. In a second EMG, the results are indicative of "mononeuritis multiplex or motor radiculopathy", but...
I recently listened to two seminars sponsored in part by the Steve Gleason Foundation. The subject was Medicare-paid custodial care. The basics to qualify are: 1) a patient must be home bound. 2) must require professional medical care such as skilled nursing, speech therapy, or physical...
I had hoped that I would be able to report back with some kind of diagnosis, but unfortunately I still do not have one. Timeline since my last post:
-went to a podiatrist. Has a foot MRI which showed all sorts of things such as tendinopathy, mucoid degeneration, joint effusions, tenosynovitis...