That is what this forum is to me. I am happy for any constructive, supportive things I can do for others but I honestly just love how I can say what I mean here about my own life.
People ask me how Brian is, bless their hearts. I appreciate it, and I say he is okay/stable. I may change that to...
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Hello,
My name is Sura and I recently turned 21 and I believe I have been getting symptoms of ALS. I will explain what I have experienced so far.
July 14 to July 20
I started getting twitches all over my body, Mainly just my legs. I counted roughly 10 - 15 twitches per day. Most of them were...
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bulbar onset
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Hi my name is David. I am 32 years old and really scared.
A little over 4 months ago I had fasciculations start continuously all over my body. They have not stopped at all since they started. I get a fasciculation every 2-10 seconds on average with sometimes several firing off in a row. I have...
My dad was diagnosed last week with ALS. He has an aggressive form. Doctors think he only has a few months to live. He has a tracheotomy and feeding tube. The past few days he's been having trouble breathing. He's been getting a lot of phlegm build up. The doctors are having a hard time getting...
hi...i haven't found a definitive answer. can i get some alka seltzer into my PALS through his g-tube? if it works so well on phlegm, i'd like to get started asap.
tnx...
:confused:
Hello All,
I am a caregiver for a close friend with ALS. We are late in the stages of it, and it really seems to be moving quickly. New things every day...
My PALS is home with close friends spread around the clock to assist with the ability to stay home.
The atrophy is really...
I have bulbar ALS and have been noticing that I get thick mucous that feels like it sits at the back if my tongue/throat. It seems to be worsening. Is this typical as the muscles in the mouth weaken?
Has anyone had benefit, in saliva reduction, by taking tomato juice?
I just came across this article:
"For the management of excess saliva, we suggest drinking two glasses of tomato juice daily, if possible. Tomatoes contain high concentrations of lycopene, which is a natural reducer of...
Hi friends!
My mom was diagnosed in Feb/17 and seems to have bulbar onset although the doctors haven't said. Her first symptom was hand weakness and now she has slurred speech, decreased FVC and just recently issues with swallowing. We live in Canada and are getting the generic version of...