person with als

That's more of a question than an answer, Some days are just too hard. I do need to learn to be at peace and go with the flow of whats happening to me, and yet at the same time i want to fight it - but that too, can be exhausting - too exhausting. It does not take much these days to 'knock' me...

Hello to all. First off I would like to say that the work you people do on this forum is amazing. The people with and without ALS. I have learned so much about this disease over the last few weeks and I really think you people have an amazing community of caring people. Here is a little...

Just a little survey to help me decide what I should do when I can't breathe on my own. Are you on a ventilator now, because you need it to breathe for you? (yes/no) If you are on on a vent to stay alive, would you do it again? (yes/no) If you are not on on a vent: Do you plan to go on a...

I found a Patient ID Card that can be carried to explain why you can no longer speak to people: The wallet size ALS ID card for those with speech impairments. The card reads “I am an person with ALS, better known as Lou Gehrig’s Disease. My speech is slurred, or I am unable to speak, as a...

My beautiful husband, my love, my life, my soul, my salvation, my strength, my joy, my happiness, father to our wonderful girls, passed away two weeks ago at home, surrounded by so much love. We are all so grateful we had made the decision to stay home always and appreciate the fact that we...

I have so much to say! It's been hard to find time to go online these past two weeks! Hal is in bed now, alarm outside his door, let's see what I can do! Caregivers perspective here: Today, I feel really bad that I encouraged Hal to get the tracheostomy NOW. Hal and I both have always...

This description is based on research up to June 2009. Functional/somatoform neurological disorders are mental illnesses and adaptations that cause real physical symptoms, but without an addressable physical cause. The one I'm going to be talking about mostly is conversion, because I know it...

Hi there, I recently read on a "fact sheet" about repetitive behavior related to cognitive changes that can occur as ALS progresses. I'm wondering if the person with ALS realizes that they are engaging in the repetitive behavior and can't inhibit (kinda like what can happen for some people...

As I was reading Rose's post yesterday about, "What ALS cannot take" I thought of all of the WOW moments of life. We've all had them - that first Christmas morning, the first time you saw the ocean, your first kiss. I could go on and on and on.... So, I wrote a blog about some of my WOW...

Well sadly my husband got a difinitive ALS with bulbar onset diagnoses yesterday, this is how it all went........... he asked him a lot of questions, then checked his reflexes then said i would like to do another quick EMG to see what is happening and it was quick compared to the last one ( that...