person with als

  1. Atsugi

    Life Expectancy and its Variables

    I copied some statements (below) about life expectancy. Here’s what I think I know from the doctors and from helping my wife as she progressed: In ALS, death usually comes from impaired breathing, especially aspiration pneumonia due to swallowing problems. If the patient lives long enough...
    • Atsugi
    • Thread
    • ability als alsa bipap breathing bulbar bulbar onset death diagnosis early familial familial als increase morphine muscles nutrition onset peg person with als pneumonia respiratory riluzole statistics stats swallowing symptoms tracheostomy young
    • Replies: 13
    • Forum: General discussion about ALS/MND
  2. affected

    Resource If you've just been diagnosed - what to do now?

    This diagnosis is worse than having a bucket of ice water tipped over your head. The detail of this sticky can be summarized by these steps which are not necessarily in the same order for everyone: 1. Absorb the shock 2. Find support systems 3. Tell people as appropriate 4. Put legal affairs in...
    • affected
    • Thread
    • anger diagnosed hours information manual muscles person with als possible a pwc rapid progression reading risk slow progression software supplements trip unknown young
    • Replies: 1
    • Forum: Resources
  3. T

    Caregiver for a mean person with als

    I am new never did a blog. Ian a caregiver for my spouse with als. He is very mean and can't seem to make up his mind ever. He asks for something then says never mind, only for 10 mins later asks again. And then he treats me like a servant. I cannot go back to work until we hire some help. How...
    • Tracy500
    • Thread
    • als back bed blog caregiver children kids person with als work young
    • Replies: 10
    • Forum: Current caregivers
  4. A

    breathing spell

    Hows anyone experienced episodes where it looks to caregivers like person with als is having a spasm or something in chest or face-cant really respond if you ask them questions. Oxygen drops to 80's then chest hurts. After a few seconds or minutes oxygen recovers head and chest hurts and feels...
  5. L

    Update after appointment with Dr. Appel

    I know I started at thread back in August regarding my rather sudden onset of symptoms and a questionable EMG. As promised, I waited until my appt with Dr. Appel to return to the forum rather than unnecessarily pepper each of you with questions that you obviously can't answer. So I figured I...
    • LukeL
    • Thread
    • als als? arm back denervation diagnose diagnosis early emg life muscles onset person with als problem questions surgery symptoms timeline twitching update weakness worried
    • Replies: 30
    • Forum: Could this be ALS?
  6. T

    I don't know what to do any more

    Hi All, Don't really know where to begin, so I'll just jump right in I guess. Some of you know my situation from my earlier posts but I haven't been that vocal recently because I'm too tired and overwhelmed. My mom (87 and diagnosed with bulbar onset almost 2 years ago, had symptoms at least 3...
    • TGB1
    • Thread
    • als back bed brother bulbar bulbar onset caregiver diagnosed diagnosis dying eye feeding feeding tube fell hip immediately nursing home onset pain person with als sad symptoms vacation
    • Replies: 25
    • Forum: Current caregivers
  7. adozi

    Staying Mentally Strong After an ALS Diagnosis

    I think this warrants its own post. Hope it helps people! "Dealing with any chronic or terminal illness is challenging for anyone. It's OK to not be OK with it," said Kraunelis. "The hand that’s dealt to us isn’t always fair. But how we play that hand is within our control. We can choose to...
    • adozi
    • Thread
    • ability age als anger balance coping dad denial depression diagnosis driving early family healing heart helpful hope ignore improvement information life love mental health natural person with als problem questions stages support treatment
    • Replies: 13
    • Forum: General discussion about ALS/MND
  8. A

    Caregiver for Father

    We live in Houston, Texas and I'm wondering if anyone can recommend a good caregiver. I would like someone who has worked with a person with ALS. Please let me know.
  9. B

    Dear Ativan...

    Hello there! My mom has been living with ALS for about 4 years now. At home and on hospice. Was recommended that she try Ativan because she has EXTREME anxiety. Just figured I'd share our experience with it...Previously she was taking xanax which was working well. Nurse suggested Ativan with the...
    • BlueK58
    • Thread
    • als anxiety back confused crying dynavox fear hospice hours info meds person with als scared wanted worry
    • Replies: 7
    • Forum: Current caregivers
  10. Johnnysgal

    Advice

    Hi, I was just wondering if some of you could tell me what you think is the most important thing to a person with ALS? I want to be able to help my friend as best I can.
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