pennsylvania

  1. ZenArcher

    To all Pennsylvanians

    I would like to see every PA representative be a cosponsor on H.R. 5454. My representative Chris Carney is already a cosponsor along with Philip English, John Peterson and Todd Platts. I have emailed all reps that will accept email from non-constituents and ask that my reps office contact the...
    • ZenArcher
    • Thread
    • advocacy alsa brain dementia diaphragm disability early free information lou gehrig's disease memorial movement muscles pennsylvania problems risk support taste twitch veterans website
    • Replies: 0
    • Forum: General discussion about ALS/MND
  2. J

    Need info on Rilutek use 2 plus years

    Greetings: I posted this over on the PALS section and didn't get much in the way of answers, so I am trying here, I need to know if anyone has any information about the value of Rilutek after two plus years? Back when I started taking it I was told it was known to help some people for six...
  3. liz

    Reality Check

    OK, so I'm one year past diagnosed and haven't asked for help outside of our household. My family lives 7 hours away but my husband has three single, healthy, childless sisters living within 10 miles of our home. We've been trying to get our raised ranch home ready to sell and all we asked for...
    • liz
    • Thread
    • book cats cold family hours pain pennsylvania volunteers women work
    • Replies: 23
    • Forum: People with ALS (PALS)
  4. ZenArcher

    To wait or not to wait, that is the question

    Hello all, I've been hanging around on and off for a bit. As you may or may not know, I got my diagnosed in May of this year. Since then I've been learning everything I can, trying to plan ahead and spending more time with the family but I am still working. Retirement is not an option at this...
    • ZenArcher
    • Thread
    • atrophy cost diagnosed diagnosis early family fingers grants ice modifications paralyzed pennsylvania questions symptoms thumb veterans
    • Replies: 24
    • Forum: People with ALS (PALS)
  5. T

    Lifespan Respite Care Act Passed by the Senate

    Received this email today, and wanted to share: -------------------------------------------------------------------------------- The Amyotrophic Lateral Sclerosis Association, Capital Office 601 Pennsylvania Avenue, NW, Suite 900, South Bldg., Washington, DC 20004 (202) 638-6997 * Toll-free...
    • teesa1970
    • Thread
    • advocacy als alsa conference early free grants information pennsylvania questions respite senate wanted website work
    • Replies: 0
    • Forum: Current caregivers
  6. P

    yawning - twitches? AND, 2nd opinion?

    Hello, Well - another day God has given us. After my husband was diagnosed with als, at that time we both agreed to take one day at time. He's been so tired lately. I think he's pushing himself too much, trying to convince himself he is still able to do anything and everything. Anyways, my...
  7. R

    first transplant of fetal stem cells into human brains

    Where there is hope Ron FDA approves first brain stem cell transplant Friday, October 21, 2005; Posted: 9:33 a.m. EDT (13:33 GMT) HEALTH LIBRARY Food and Drug Administration (FDA) Health Organizations Medical Research or Create Your Own Manage Alerts | What Is This? SAN...
    • ronrfc
    • Thread
    • age back brain cell children design drugs embryonic food genetic immune information kids medical paralyzed pennsylvania research stem cell stem cells stroke testing treatment wanted young
    • Replies: 0
    • Forum: General discussion about ALS/MND
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