peg

  1. M

    second torpedo

    It is probably my fault. Like the rest of you know if you get behind it can be a struggle to catch up. We are struggling with bathing, and getting me up if I fall. It is a lot harder than it should be but we are still getting by. I can still make transfers and walk short distances, but when...
    • MyNexus2U
    • Thread
    • age als back breathing chair children choking clinic cramps dad data depression diagnosis emg food insurance mistake mnd peg possible a sleep support swallowing symptoms tests transfers vent
    • Replies: 3
    • Forum: Newly diagnosed
  2. M

    Medicare pays?

    I'm looking for the magic words that will get Medicare to pay for a PEG pump and the feed and hydrate bags that go with the pump. Seems that medicare is very conservative and doesn't like paying. Although I think they are paying for the same feed and gravity feed bags. Are the hydrate (double...
  3. Dave Kerwood

    My wife has been diagnosed with MND-ALS + FTD - Part 3

    Thought I would come back and update... Things have not gone too well. Julie is now at 46.3lbs. The good news is that she is having her PEG fitted on Friday. So much has happened over the past couple of months with her FTD + MND/ALS. All I can say is that the MND/ALS is loosing. FTD has taken...
  4. Scotiaspirit

    They want me to have a PEG so soon after dx

    I was to the ALS clinic yesterday and they did my speech and swallowing study... it certainly was a bit shocking with the results. Other than some hoarseness, my voice is still fairly strong, my side to side motion of my tongue is still good and strong. My lip is still pretty good other than...
    • Scotiaspirit
    • Thread
    • als choking clinic diagnosed food medical muscles peg speech swallowing tongue trouble swallowing voice walker weakness
    • Replies: 21
    • Forum: People with ALS (PALS)
  5. A

    A PEG Experience

    Thought I would share a recent event with my PEG. I had it placed 6 months ago. Received all the information of what to do if something happened. Thinking of course, that won't happen to me. Guess you know where I am heading now with this. My husband and I were you on a 7 day cruise and the...
  6. K

    Exercise!

    I have been going to a workout place, three times a week now. I started 4 weeks ago. It is 100 degrees in the room, it with a lot of elite athletes. It's hard to describe, but I would say it's mostly calisthenics, and stretching. It's about an hour or so, he starts with a motivational "lecture"...
    • kenschatz
    • Thread
    • afo balance bipap breathing chair clinic exercise feeding feeding tube foot fvc helpful hours life motivational muscle peg quality of life shower sleep trilogy wanted
    • Replies: 19
    • Forum: General discussion about ALS/MND
  7. M

    CALS here with my PALS Dad

    Hi Everyone, I'm new here. My Dad was diagnosed at the end of January, 2016. His progression seems to be rapid and he can't even make it to his first Clinic which would have been tomorrow. He'd have to go flat on his back in an ambulance. He is 83 and just arrived from independent to skilled...
    • MsBoots
    • Thread
    • age als back bipap cals clinic dad diagnosed diagnosis equipment health heart helpful hip immediately insurance long term care insurance new here pals peg progression reading wanted wheelchair work
    • Replies: 7
    • Forum: Newly diagnosed
  8. S

    Please help with finger curling

    Just a question- diagnosed Aug 26/15 ALS Bulbar inset. BiPAP, speech almost gone, just had 11 days ago the peg tube but complications from what normally is a simple procedure set me back a ways, weakening In upper body and some respiratory problems of course. My left hand has been weaker and one...
    • Sjm16
    • Thread
    • als back bipap bulbar desperation diagnosed finger fingers medical natural peg problems respiratory speech twitching
    • Replies: 17
    • Forum: General discussion about ALS/MND
  9. Janis J

    magnesium via feeding tube

    My PALS has been taking 250mg of Magnesium twice a day for a long time, for leg cramps. We've just started using the PEG tube for pills, after checking with his docs which ones are OK for that. His current magnesium pills crush nicely but don't dissolve at all. There are magnesium compounds that...
  10. P

    Delayed Gastric Emptying

    Does anyone know what medications can help delayed gastric emptying? My husband has a PEG and gets 4 feedings a day by a pump. Sometimes when I connect him for a feeding there is still Jevity in the stomach from the prior feeding 3 hours earlier. He only takes Zantac twice a day for reflux. He...
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